AWAKE.........

Hi Sal LondonLass.  Thank you   

I tend to drop off on the sofa in the evenings too ( especially if the TV prog is boring). 

Judith xx

Hi  

Take it one step at a time. My SE on Capecitabine are tiredness/ dry skin and eyes/ sore mouth/ in the main. 

I’m also on daily blood thinners via a stomach injection: Tinzaparin. 1 in 5 people with cancer get blood clots either DVT or in lungs. I have clots in my  lungs. 

I may have to have an injection of Denosumab every 6 weeks : strengthens bones, but I’m resisting it  so far ( 1 in 10 can get problems with the jaw : necrosis).  

Judith xx

Hi seaspirit44

Thank you It’s surprising how medical appointments can fill up a week !!

Judith xx

, I love your pics with encouraging words xx

, I was on Capecitabine for 6 months finishing Feb 2018. I found it quite doable apart from sore feet, for which there are solutions. It is not as bad as the iv ones, and it seems ti work well. Good luck snd keep posting xxxx

I did 9 cycles of Cape when I was first diagnosed - I just had some fatigue, mild low grade nausea at times and hand/foot syndrome, but life when on basically as normal! My hair thinned a bit but didn't fall out. I managed to rush up and down the country and renovate my Mum's house whilst I was on it, so life was very doable! 

I had to come off it eventually due to the hand/foot syndrome - I would have stayed on it, but my oncologist is a stickler for the 'rules' and graded the problems I had and said he couldn't keep me on it - shame, as it was working really well on the cancer! 

Hope you first dose went okay - it always seemed like a lot of tablets!!! 

Line insertion didn't happen yesterday - they contacted me to say the doc was ill, so now being down next Wednesday instead. However, the threat must have frightened my veins into submission as they got the cannula in first time for chemo! The nurse who drew the short straw went round all the others for high fives!!!  

I am incredibly grateful to everyone who has given me hope that I might be able to cope with capecitalne , but also that it might work ! The onco put it to me that it was awkward because the cape was needed to “ control “ the liver mets ,but that the liver can’t cope with the therapeutic dose .....oh dear .....so I have started on a low dose .....

had a fright this am when I was reversing the car and my foot / leg went into a sort of cramp and I stalled the car ......

going out for lunch !   Xxx

hope you had a lovely lunch xxx I always think they give far too much medication anyway, like Letrozole I read the bumf from the makers and 0.5mg totally annihilates your oestrogen but the tablets are 2.5mg. You're only tiny anyway so hopefully a low dose will be enough. xxx 

 I have almost finished my ninth cycle of capecitabine, it seems to be working so far. I have liver, lungs and bone mets. I'm due a ct scan on the 11th and will get my results on the 19th. The main side effect that I struggle with is nausea. I still have my hair, it has thinned, but I have very thick hair, or should that be had as it's awful at the moment! My natural curls are gone, it's flat and lifeless, don't like it. Apologies to those without hair at the moment, but I did lose all mine in 2016, so feel able to moan about the state it's in now. Seriously thinking about having it all chopped off, but will wait for scan results as if it's not good news, I might end up on iv and lose it again anyway!!

For everyone that needs one ...

Cathy did you get round to applying for PIP? Sorry if you've mentioned this elsewhere, but was just wondering.