AWAKE.........

Night everyone, good luck to those with treatment or appointments tomorrow x

, good luck with your new treatment you are one amazing lady x

Snowys Mum, I have found an article on this yesterday, it does say 0.5mg - I have book marked to read it.

To all the Fruit Loops, sending love and hugs and I'm off for an early night.... if Baxter turns up on time!! 

Nighty Night xxxxxx

Jane ()...........

I think you could do with a hug too! Remember we are all here for you too! If you are having a rough time and need to off load SHOUT, SCREAM or CRY! You go for it my friend.

REMEMBER you didn’t ask for any of this and you are allowed to feel angry at the world and sad at the life you have lost! Living with secondaries isn’t easy. Maybe it’s time we were all a bit more honest about how we really feel?! That way others will see it’s okay to admit to feelings that feel ‘wrong’, because the truth is we can’t help our feelings and you know what I think it’s perfectly natural and understanding to feel envious of others in a better place! I DO!! There I said it!!

Love you my friend. Please don’t hide away. The AWAKE thread is a safe place to post, whenever you need too!

LP will be with you on the 11th and for your results on the 19th! Together we shall get you through this! Sal xxxxx

, you just carry on doing what you are doing, putting one foot in front of the other. You are doing so well. Let the doctors worry about what drugs and doses to give you. You concentrate on getting through each day having as much fun as you can! You have done amazingly well up to now, keep going my lovely. 

Fingers crossed for few side effects on you but maximum effect on kicking the Cancers butt!! Big Hugs xxxxxxxxx

Hi Jane ( ) 

No, I never did claim for PIP! I got all my retirement money through in November and then felt guilty about claiming anything, although I know that PIP isn't means tested! I might still do it at some time... 

Glad to hear that you're still coping on the Cape despite the nausea (yuck!)  - fingers crossed the scans will show that it's continuing to work! 

As for the hair - mine thinned on the Cape as well and I didn't have a good lot to start with - it's almost worse when your hair looks rubbish than when you haven't got any! The drug I'm on now (Eribulin) isn't one that affects hair in many people apparently, but 80% of mine fell out on Day 8 of the first cycle - even faster than FEC! I shaved it as I looked like Gollum. Since we've gone to 50% dosage, I now now have about 0.5 cm coverage again and it's already annoying me as it sticks up in some places and not others! 

Hope everyone is as well as can be today - hugs to all! 

Have any of you lovely Fruityloops got a magic answer for cramp?

I've been suffering worsening cramp in my calves/feet and wrists/hands/fingers over the past few weeks. Just pointing my toes sets it off in my feet, and as we all know, it can be really uncomfortable! 

My potassium levels are fine according to the oncologist, and when I asked him if there is anything else I can take, he said just a normal multivitamin/mineral tablet - he doesn't want me to take ANY high strength supplements whilst on the chemo. The multivits on sale in chemists only have 27% of RDA for Magnesium, which seems to be the other mineral that can go astray. 

I'm trying to drink more tonic water to see if that helps, but if anyone has any magic cures for cramp, I would be eternally grateful!!! 

, have they checked your magnesium levels? I know JoDec had similar problems. She might be able to help. 

Sorry can’t be of any other help xx

Weeblemum , foot cramp is horrible , as far as I have been told potassium and magnesium are culprits I take a magnesium tablet and the dr said it was useless ,  it if it made me feel better he didn’t mind ! Current level is 0:8 .     But I am also told calcium matters too ,  you must be having this measured ?  Hope you can get some sense out of someone ......xx

I haven't had magnesium measured - I'll have to see what foods are high in it as the oncol doesn't want me to take supplements! 

Calcium levels are fine - I take calcium and Vit D (prescribed) every day to go with the deonsumab injections for the bone mets. 

Thanks a lot so far!!!

WE MADE IT TO 16600......

OMG how do we manage it! We have definitely slowed down, but it’s nice to know we can still be here for each other when needed! I’m sure we will eventually reach 20000!! 

Off to bed sending love and hugs to all xxxxx