AWAKE.........

Also,Anna12345would you mind to put the poster of the “nibble a bit at a time theory)which Snowys mum mentioned up again?I tried to find it but got hopelessly lost.It looked very useful xxx

Morning, Fruity Loops, 

thinking of you all, especially our founder LondonLass, fatigue is a total pest, and that complexity with pain management is enough to make anyone tired! But apart from anything else, are they checking your vitamin levels thoroughly? 

Anna12345 I’m so glad you’re reassured by being ‘ahead of the game’ and doing so well, rehab after such a big op is a challenge in itself, and you must have tremendous inner persistence to get so far so soon. 

Violetsniff, that looks so cute! Clever you!

Snowys Mum, I hope you’re really enjoying your time off….and the wee fur babies too.

Flossie25, hope you’re doing ok? 

Hugs to all, including those I haven’t named…..xxx

Thanks Moomy! I’m having real problems posting on the thread so I hope this works, none of my responses are posting Violetsniff here’s the spoons post again

Hope all you lovely ladies don’t mind me diving in to your chat was diagnosed with ‘basically’ triple negative grade 3 etc etc on Christmas Eve. Let’s just say sleeping has neither been frequent nor glorious since then and think tonight might be another horror…

Got first chemo EC on Friday to be followed with Docetaxel. Some things keep playing on my mind, the first is that the ct showed was was described as a ‘crinkle’ on both lungs (wtf is a crinkle?!) but it ‘could have been the way I was lying’ (stiff as a board in a CT scanner!)…then oncologist says the CT showed inflammation in lungs. So what does that mean? Is it cancer spread? Covid? Just weird lungs?

The second and marginally more horrifying is that we have no kids and this is going to chuck me into menopause being 39. I always assumed there was a bit of time left but obviously not now. Especially with the cyclophosphamide which basically does a number on your ovaries. The initial surgeon said oh we can give you something (which I suppose would have been a GNRH agonist) to shut down your ovaries but the oncologist was a bit like oh no it’s not that type of cancer so wouldn’t do anything and anyway the chemo will shut down your ovaries anyway (!) you don’t say

add to this the dreaded wig conundrum and the prospect of surgery after 20 weeks of this no wonder you ladies are sleep deprived! Anyway sorry for the rant, I probably should have started a thread but it seemed a bit ranty for that lol x x x

This is a good and understanding place to rant and know you are completely understood, ! And I’m sure you will be welcomed by us all!

 Sadly I’m off to bed, so am popping on to say night night to all Fruit Loops, sleep well and stay safe,

plenty of sleepy fairy dust for all who wish

hugs xxx

Welcome  yes there’s plenty to keep you awake after your diagnosis. Generally you’ll find someone on here still awake! I’m going to try and get some r&r now, had my mastectomy two weeks ago and I have some great painkillers that are actually letting me sleep  I’m really sorry about your children dilemma, I’m guessing there’s not been time to have any eggs saved? Push your team on the lungs things, you need answers, have you been allocated a breast care nurse? I had the same chemo as you btw, it’s not uncommon on here but I can help with any questions. We sometimes get different side effects to each other but as a guide X

Aw glad you are finally getting a sleep after all that carry on and hope you are recovering well from mastectomy. I actually do have eggs frozen from what feels like a previous lifetime but don’t know if they can still be used once you are in proper menopause? I seem to ask questions but get only answers to questions I haven’t asked quite a lot to be honest!!

MissLoris

Welcome. Lots for you to  get your head around. So sorry for your uncertainty about the lungs. Sounds like you could do with speaking to your MacMillan nurse and tell her you would like a bit more info about this crinkling and what it means. Could just be a bit if a virus.

Can you have some eggs frozen? Again your MacMillan nurse might be able to let you know if this can be done. 

I am often awake in the night. Quite sleepy today however, as I went out for a meal with friends last night   for the first time in 2 years and am niw exhausted so liable to nod off shortly. I may well be awake again later though as so often happens. 

I suggest writing a list of all your questions and you might then be able to sleep for a bit. I always find writing worries down removes thembfrom the forefront of my mind. You can then call the nurse tomorrow.

I wouldnt recommend looking anything up on the internet. That way sleepless nights lie!!

Take care 

Well! I underline this answer with I am not medical! But I believe that yes they can be used after your own menopause and you should be able to use them after your treatment all being well. So maybe all hope isn’t lost in that area. I have friends who have had fertility treatment successfully after having their breasts and ovaries removed during treatment. Yes thanks, I’m doing ok after my mastectomy, ahead of the curve apparently! Obviously it’s not easy and there’s some discomfort but it’s another step to getting through this! X

Welcome . You've found the right place to rant.  
Anna12345. Glad you have painkillers letting you sleep.

I came yo bed an hour ago for early night and to watch girlie film on iPad.  Daughter then FaceTime me, hubby came yo join in and now I'm wide awake and thinking about getting up for cheese and biscuits!