Her2+++ The Her2 Crew - this will be a thread dedicated to pestering NICE and the NHS to fund our drugs

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morning all

I had Her2+++ breast cancer and have about a 20% risk of recurrence according to the predict tool 

http://www.predict.nhs.uk/predict_v2.0.html

If I had private healthcare I'd have a selection of drugs to keep me going, Herceptin, Perjeta, Kadcyla.

On the NHS I can have Herceptin and Perjeta but Perjeta is possibly about to be rejected.

insert gold standard care for primary Her2+ breast cancer : 

I had EC x 4 and T x 4 and Herceptin x 18

for metastatic or advanced : as I understand it you stay on one until it stops working and move on to the next.

but I'll build a better picture as I research it more and you guys all chip in

this is our group now so bookmark it.   we can't have an actual group but this will work.

I'll tag a few people, as I remember who is Her2+   is first since you messaged me, ... who else ?  ? although you have the luxury of a slightly different system down under.

 


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welcome to the gang

Carolyn

xx