stereotactic Radiosurgery

Hi All

I wondered how you got on with your results? I hope they were good.

Thank you Gobaith, Never hurts to have a hand with faith.

Take care

Good to hear from u again Gina.Keep as well as u can xx

Hello all,

Had my MRI results tumor has shrunk by 2 cm which doesn't sound much but have been told that is good as the treatment aims to stabalise.  However my oncologist said that there is something 'non specific' on the scan on the other side which may be causing the tinnitus.  He asked the neurologists to relook at my scan and said they might decide to do a lumber puncture.

I have since received a call from a nurse following the MDT meeting and she said they are just going to repeat the MRI in 3 months and weren't worried. I am a bit apprehensive about this as tinnitus now constant. I do have a neurology appointment in 2 weeks though so will question further then.

In the meantime I have stopped the steroids, I still get a feeling of pressure in my face but it is more bearable than the side effects of the steroids and is much better some days than others.  Face still numb but guess I will have to learn to live with these symptoms now.

I am trying to feel positive about my results but actually feel quite down.  It seems like I am waiting for the next symptom everyday and cant relax and get on with ife - has anyone else felt this way ?   

Shrinkage of 2cm is great!

My various things eg nodules in chest generally increase by a few mms/ 3 months, so 2cm is actually quite a lot.

It's quite natural to still feel down, especially as you're having to put up with things like tinnitus n pressure in the face. What a drag. 

Good luck re neurology appointment. Let us know how u get on pls.

It is eight weeks since I had stereotactic radiosurgery and just waiting for results of MRI to see if my brain tumours have grown 

it’s a terrible time waiting