New member.

Hello Pitman1961! I’ve been here on and off while dealing with grade 4 astrocytoma, and I always find it helpful. How are things for you?

Hi Leeluu , thanks for the reply . I have just updated my profile to my current situation so it's all on there . Feel free to read it .

I have been on this site for a while but not really posted much but I am now thinking that I should be more actively involved .

Peter , my real name ;-)

Hi Peter, just read your profile - that’s a lot to deal with in the last year. It’s so odd to read people’s stories - they can sound so calm and yet expressing yourself online takes out so much of the real fear and stress. It must have been an awful year. I think I was in a daze for a while after my diagnosis, but tbh I can’t remember it very well, it was all so intense. Also my craniotomy left me with a lot of memory issues which are actually improving with time.

its just good to hear from people who are having similar experiences. I don’t know if I’m actively involved, but I like the thought of that. Are you looking for help, questions, or just conversation, I wonder? (I’m now asking myself that too!) 

Alex 

Hi Alex , thanks for your reply . 

It has been a tough year but I genuinely feel it is harder for my family than it is for me as they feel so helpless at times . But as patients all we ask is that they are there for us .

I think over the years of  having 3 monthly scans I have learned to prepare myself for bad news when I go back for the results . It's almost like waiting for a day that you don't want to come but know deep down it will happen sometime . My wife always says that on our journey to the hospital for results I am very quiet and she doesn't . know what to say . I always say to her that she is with me and that is all that I need . 

I have mentioned elsewhere that going to the Christie can be a good kick up the backside if I was feeling a little sorry for myself as I regularly see people there who are having a far worse time than me. 

Regarding the forums I think it is good to speak to people who fully understand what you are going through and I really wish I had got involved sooner but I'm here now for any of the reasons you mentioned . 

Thanks again,

Take care ,

Peter

HI Peter

a warm welcome to the group. I had a read at your profile. Thanks for sharing. What a lot you have had going on.

I replied on your other post before I realised that this one was here.

This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

love n hugs

Wee Me xx

Hi again Wee Me ,

I just replied to you on the other post .

You will have to be patient with me as I am new to this but I have to say that I am thoroughly enjoying the interaction already although I sincerely wish none of us has any reason to be here .

But as the song says Que' Sera' Sera'

love n hugs ,

Peter xx