Meningioma grade 2

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Hi, I am new to the group, my daughter is 46 and has recently had surgery and 6 weeks of radiotherapy in Spain, she is due for a mri in January to get the results of the treatment, I am feeling really anxious and upset, doesn’t help not living there myself, but she is suffering with double vision  mainly in one eye, I was wondering if anyone else had experienced this as I keep thinking the treatment hadn’t worked and the tumour is still growing or could it be the after effects of treatment, thank you x

  • is there ongoing treatment? after my initial surgery and 6 weeks radiochemo, i then had a further six months of oral chemo. things can take time

  • Hi, not as yet just waiting for her to have mri and get results 

  • Hi, just wanted to add that recovering from brain surgery can take time and have some odd side effects. I was diagnosed with a grade 4 astrocytoma in 2022, and after the operation, I could barely open my left eye for weeks because so many nerves had been tinkered with. But it gradually strengthened - the elasticity of the brain is astonishing! 

    waiting for results is the worst bit, but at least it won’t be long now - a large hug to you and your daughter xx

  • HI Twohoots

    a warm welcome to the online community. So sorry to hear about all that's going on with your daughter. Being so far away from her must be making this so much harder for you too.

    It's still early days here. Brain surgery takes time to recover from. It's also worth bearing in mind that  radiotherapy continues to work after the treatment cycles stop. I supported my late husband through his stage 4 brain tumour journey. He had 6 weeks o oral chemo and radiotherapy in combination and it was almost a month after the final radiotherapy session before we began to see any improvements. 

    Don't lose heart. The MRI in January will give a clearer picture of things and also it gives time for any inflammation caused by the radiotherapy to settle down. 

    This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

    It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    For now though I'm sending you a huge virtual hug and lots of strength.

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thank you for your lovely message, it’s good to hear from other people going through similar xx

  • Thank you so much for your lovely message, it helps so much to hear other stories xx