Brother diagnosed with a butterfly glioma only seven weeks ago.

I honestly don't believe it. It's exhausting but find a way to continue.  From being a fully independent 48 year old male who would do anything for me to the awful situation  my brother is in is horrific.  

What's the best way to comfort him whilst being scared, angry and anxious.  He's deteriorating and it's just not real. 

Staying with him making sure he's safe, has everything he needs and giving him extra pain and anxiety drugs is what I'm doing but there must be more?

Any suggestions on how to ease his anxiety or agitation without the use of medication? 

Thank you. Tired but listening to him through the use of a baby monitor. 

Sorry if this doesn't make sense but just been unidated by professionals, his friends and it gets too much for him.

Hi, I know the pain you and your family are experiencing.  My Husband and soul mate Paul was diagnosed with Glioblastoma 23/04/25 - they gave him a ‘few’ months to live - he got some radiotherapy treatment which knocked the stuffing out of him & he survived exactly 5 months!  No previous health issues worked right up to the day before diagnosis.  What can I say to you?  Stay positive - we did but it is cruel!  Say everything you need to say ask if there is anything he wants daily - simple things like food, haircut or shave.  Paul used to like just a wee run in the car to get out of the four walls when he wasn’t in bed unwell.  This is brutal and devastating but I don’t think you can do more than you are doing.  Any day to day changes that I worried about I used to phone the nurse specialists and they would tell me if the meds needed adjusting.  I always worried about Paul not putting his feet up to ease swelling as they got so bad with the steroids.  It is a terrible illness I wish you all the best.  Take care

Hi

so sorry to hear about all that is going on. Life is too cruel.

My last husband became very agitated/anxious about 3 months before he passed away and the doctor prescribed a really low dose of Lorazepam. It was just enough to take the edge off his anxiety. He was not a believer of trying holistic approaches like meditation and yoga etc.

I'd encourage you to speak to your brother's medical team and let them know that you are concerned about his anxiety.

This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

For now though I'm sending you a huge virtual hug and lots of strength

love n hugs 

Wee Me xx

Hi, I completely understand and know the pain you are going through. My husband, 62 and completely out of the blue (when extremely fit and healthy) has got diagnosed with a grade 4 butterfly glioblastoma with 3 months :( from July. He has had radio and chemo only (as unable to operate) and is really suffering with his mobility now probably due to the high dose of steroids (8mg morning) and 4mg (afternoon). 

This is devastating for both my son and I to see and do any advice welcomed :) x