Afternoon, first post for me. Feeling absolutely devastated. I had a craniotomy on the 8/4/25, after a brain tumour was found in my left temporal lobe.

  • 13 replies
  • 55 subscribers
  • 3277 views

From the beginning, before it was removed, I was told verbally and dictated by letter of having Glioblastoma stage 4. This was by both my neurologist and cancer nurse. 

Tomorrow morning at 10am I have an appointment at the hospital, with my husband. Tomorrow is the day I will get to know. 

How do I physically and emotionally get out of bed and attend the appointment? How do I let my daughter know, the final outcome?

I've been so strong until today? I have lost myself!

I wish everyone so much heart felt Heart️  wishes 

  • HI Odette

    a warm welcome to the group. As you can see already its a safe and supportive space and there's always someone around to listen who gets it. I'm so sorry to hear your diagnosis. Life is too cruel.

    I supported my late husband through the 3 years of his GBM journey. (You can read the gist of that tale in my profile bio). He was 50 when he was diagnosed out of the blue and a total fitness freak. He lived life to the full to the best of his ability after his diagnosis. He had an awake craniotomy followed by the 6 weeks of oral chemo/radiotherapy and coped really well with it all. His only side effect from the treatment was fatigue which hit around week 4 and lasted for about a month after the last treatment. Once he had recovered he resumed his running routine. He ran PBs at all his competitive distances up to marathon and ran 2 marathons in 2022. IN fact he ran right up until a couple of months before he passed away peacefully in Oct 2023. He also went skiing in France with our daughter post-diagnosis and escaped on several boys weekends (I didn't ask too many questions about those). He even managed to appear as an extra in series 7 of Outlander when they needed someone to row a boat. 

    You mentioned your concerns about telling your daughter but you didn't say how old she is. There's some generic info in this link Supporting someone with cancer | Macmillan Cancer Support Our kids were 20 and 22 when G was diagnosed. G broke the news to them individually. They were both devastated but kids are more resilient than we parents give them credit for. There's no rush to tell her or anyone else. Tell her when you're ready. You'll find the right words when the time comes.

    sending love and light and hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Wee me thank you for your support. What a fighter he was! I've told my daughter of 23 years. That hurts the most because I've let her down. Sending all my best wishes to you and yours

    Two hearts

  • Oh, Odette, you have not let her down! You will see over the coming weeks/months/years just what a beautiful, strong resilient young woman you have raised. 

    My daughter was 20 and my son 22 when their dad got his diagnosis and their strength and support was invaluable.

    Please remember that this community can also support your daughter if she feels she needs to reach out.

    If there is anything else I can support you with, just ask. 

    love n hugs

    Wee Me xxx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm