Advice for a friend with stage 4 brain tumour

Yorkshire_defector

Hi Sam

Great to hear that your treatment has just finished!

I'm not a member of this group but I noticed that your post hadn't had any response yet. I've had a look around the site and found this information for you on brain tumour treatment. It does look like it's specific depending on what type of tumour your friend has, but I thought it'd be a starting point.

Wishing you both all the best

x

Thanks latchbrook...much appreciated and will have a look.

Hi Sam

It sounds like the prognosis is the standard one that is given for a stage 4 tumour. Did he have surgery? As that's the first treatment offered if the tumour is operable, otherwise it skips to radiotherapy alongside a low dose of chemotherapy and then stand alone chemotherapy. Though alot depends on where the tumour is and how well they are and how well they react to treatment.

You might also want to look at the glioblastoma multiforme page as well as that will give you lots of info on how the standard 3 types of brain cancer treatments in a stage 4 condition effect people and how people have coped with them. (Though it is  specific type of stage 4 brain cancer)

https://community.macmillan.org.uk/cancer_types/glioblastoma_multiforme_brain_tumour/

If you have questions feel free to ask, I had surgery last October, followed by radiotherapy, immunotherapy and just finished my 6th round of chemotherapy a couple of weeks ago. There's also a summary and detailed blog of my experience to date in my profile.

Xp

Sorry to hear about your friend's recent diagnosis.  My husband has also been recently diagnosed with a grade 4 brain tumor but it is too early for me to say much. I am surprised to hear that your friend has been given such specific life expectancy as I believe that the prognosis depends on how well the patient responds to treatment.  There is an episode on brain tumors in the Macmillan podcast that you might find useful.  

Thanks

Surgery is not an option, he had his first round of rads & chemo the other week and was feeling quite low as its really affected his eyesight, guess that may be to do with where the tumour is as well.  He is overall however, I am glad to say, being very resolute about everything.  His wife however is not coping quite so well....we've suggested she get support but time will tell.

I'll have a look at your blog and pass on the info above and blog details.

Thanks again & hope you're doing well.

Sam

Thanks

I was surprised as well but we're aware that its based on averages, I did think that docs were always loath to commit to timescales but I guess some do...I can see the up & downsides of this however.  I have heard tales of people being told the same and then living for many more years.

I'll pass on the info, thanks.

Good luck to you & your hubby.

Sam

my husband passed away last December from a brain tumour. From diagnosis to him passing was 8 months.His eye was also effected what we discovered was that the last colour he lost was yellows and oranges  which is normal apparently we bought a yellow keyboard for the computer from ebay which helped him use the computer for longer.we also changed the settings on his mobile. I hope this helps a little  x

Hello, I was diagnosed With GBM4 10/9/17, surgery 13/9/17..... if anyone wants to talk to me privately let me know, I was given 3 months/2years .... TIME, in my experience is/has been very difficult to balance with 2 kids and wife.... for me, and it makes me laugh/angry that my wife, who works for the largest pharmaceutical company in the world, doesn’t support me at all................ MRI Thursday, results Monday.... my 8 year old boy slept with me last night, amazing! Stay safe, hope everyone is ok

I really feel for you, that is incredibly tough, sending you my best wishes.....

Thanks for your reply. Really useful to know and really cr4p that you've had to go through this experience too.