My husband is awaiting surgery (in a weeks time) to confirm that his tumor is a glioblastoma. His steroids have been reduced slowly but his symptoms are getting worse.
today he has become very aggressive today’s me and only me. He’s shouted at me to F OFF 4x and has thrown his phone at me.
I am trying so hard not to react and to be supportive but he talks to me with disgust
is this normal?
Hello. Ive noticed no one has replied to this. But for me, atleast with my grandma it seems normal. They don't mean it, its just a tough time for them especially with cancer. Theyre upset, tired, stressed, and exhausted. Its hard not to react when theyre like this, but we have to keep in mind its also hard for them.
Try to take a break once in a while, recollect yourself and have a glass of water. It seems tough right now but it will get better. We have to get through the hard stuff before things can get better
and sorry i am new to this hopefully my words help
HI AllieB
sorry for the delay in replying.
Sadly, yes this can be normal behaviour however it could be linked with the steroids. I'm hoping that by now you have reached out to the medical team if not can I suggest that you give them a call.
Getting the steroid balance right can be challenging. Depending on where the tumour is in your husband's brain it could also be impacting his behaviour. When my late husband G was on steroids (Dexamethosone) he said some truly vile things and would throw a toddler tantrum on occasion too before stomping off. These are hard to watch and endure but please try to think if it as the tumour talking and not your husband. Not easy but it helps.
Please make sure you take some time for yourself here when you can. Taking some "me time" is essential as it helps you to keep your wee batteries charged. Even five minutes to walk round the block or a few minutes with a coffee and a book help.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear
For now though I am sending you a huge virtual hug, lots of love and patience
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
