I was diagnosed in 2022 of a glioblastoma of the brain and given 14 months life expectancy. As we are in 2026 I’m past my expiry date. Over the past year or so I’ve never felt so alone in my entire life. I don’t feel like I’m living either I’m just existing that’s all…. I am on anti depressants. Which have helped but I still feel alone. The oncologists can’t give me a time frame and i felt better when i they gave me a life line it’s the not knowing and it’s driving me mad…
is it just me?
HI Ktownwarrior
lovely to hear from you.
I truly wish that oncologists would stop giving people timeframes. We went through this with G. He was told 12-15 months life expectancy after his surgery. His journey lasted 38 months and a day, Like you he felt he was just existing at times.
So, no its not just you. We get it . We understand.
You haven't mentioned how you are doing physically. I know something that help boost G's mood was meeting his friends for coffees and lunches and dinners. Do you have a circle of friends to grab a coffee with or lunch?
It might not be your thing but if there is a local hospice in your area do they offer support? I know our local hospice offer groups/classes for folk in a similar situation to meet up regularly. The one that they suggested for G was a mixed group and the community nurse did say that when the class was over that the men went for a pint.
You're also more than welcome to reach out here whenever you are feeling lonely. There's always someone about to listen who gets it. You're not alone. We've got you.
For now though, I'm sending you a huge virtual hug and lots of love
Wee Me xx
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