6 week initial treatment plan end.

I didn’t ring it for the same reason. Felt that bell was for the all clear celebration. Also a bit too show-offy for me

Ringing the bell i guess can mean different things to people. Completion of radiotherapy but it does go on for some of us. And for me it just seemed hollow and for everyone else. The treatment/radiotherapy didn’t bother me. But like I said for some it’s that stepping stone to their better days and makes them feel comforted

I am not likely to start radiotherapy for a few until weeks after surgery on 9 February, so have not yet got my treatment dates/timetable. I have therefore not discussed ringing the bell, but had thought it was was for all clear. Many noises are intolerable for my brain ATM so I  don’t actually think it is something that I will be able ti bear the noise of, let alone make a reasoned decision of if I wanted to. I find loud noises, particularly kitchen noises of pots  and pans, cutlery rattling etc. really hard to bear. Whilst an inpatient, the beeping of monitors and equipment drove me nuts. So, I don’t think a bell will be bearable for me. 

Completely understand what you are saying, and that's what I've had stuck in my head, the fact that the initial 6 week treatment is done, I'm still no further away from clearance as there is no other outcome with a Glioblastoma. Apart from any extended time if any. The unknown is just as bad. Nervous from this point going forward.

Sounds like a battle you're having there. 

Good luck going forward with treatment etc. I hope you take it as well as I have. Only suffered with effects, more so the last week or so. 

You keep up the fight though, things change all the time and you never know what treatments may come and help

I just wanted to comment that I was extremely sensitive to noise after my initial seizure and surgery. I was saved from having to ring the bell as I don’t think my hospital had one! I can report that after a number of months my noise sensitivity improved. I hope you have the same positive development Patchamite. 

I shall continue to use it as an excuse to keep out of the kitchen xx

I was exactly the same, even before the OP. It’s called a lot for me. One year on

Thanks Chris4286

i am glad that you have made is through this part of your treatment and is is helpful to know that not everyone suffers all possible side effects, or suffers rhem as severely as others

Keep strong

Thank you for your support xx