Numbness

From your description, it looks like she has a tumour in her spine, and not in her brain, which is causing these symptoms. Surely there will be more tests or surgery to determine what type of tumour and whether primary or secondary etc.

Hi Akist 

thanks for your mail.

on MRI it is showing Tumor in Brainstem.

But as mentioned there are no symptoms and before we go for surgery we need to be sure this is really tumor !!

All ideas/leads will be great help to us.

Well, usually the radiologists (the doctors who read X-rays / MRI / CT / UT scans) are experienced consultants unlikely to get things wrong. You could (should) ask your GP to be copied in all communications from any doctors and your GP to be sent all scan reports, test results etc You could ask to receive a copy of the report (MRI scan).

In addition, getting a second opinion cannot possibly hurt. I'd visit a neurosurgeon or oncologist and ask them to offer their view. Your MRI scans are on a computer system, many times you can get them on a CD, and many doctors know how to request the scans from hospital to hospital, even completely unrelated hospitals. An initial consultation with a neurosurgeon or with an oncologist privately should be like £250-300 and well worth the expense for all the advice they will offer. But you can also try to book to see the neurosurgeon at your own hospital, see what they have to say, and how they will explain things to you. You have not mentioned what meetings you have had so far and with whom, and what they said, so I am guessing here. With coronavirus it may be tricky so you may have to do a phone consultation.

Hi
we got the CDs and reports and have consulted different doctors and neurologists and had 2 meetings with  with neurosurgeon. They are firm with their decision but we don’t see any symptoms.

that is main concern.

as per Neurosurgeon, it is growing slowly now , that is why there are no symptoms but it may grow very fast.

Today again we are meeting another neurologist for numbness.

OK, it seems you are well ahead and have already quizzed the doctors as much as possible. Have they mentioned what tumour they think it is? Typically glioma, but it could be anything, even a secondary from somewhere else? It may be a tumour that can be removed completely, that is a question for the surgeon, if not already asked, "Can you get it all out, is it encapsulated or is it diffused?"

They say it is low grade Glioma, and may be Cannot remove 100% by surgery.

Presumably they did a biopsy of the tumour, have analysed it in the laboratory and been able to state the grade number. You have said "no symptoms" but the symptoms are the numbness in fingers? The explanation for the numbness is given to you as a tumour in the spine?

They can show no symptoms for months. I had renal cancer, had kidney removed and they thought all was clear. Had dizziness and coordination issues that they scanned for and it was a tumour in the pons. 
I had nothing before yet they think it’s been growing for about 6 months 

Hi RomanMike

thanks for your suggestion.

we are cons different scenarios as it is not an easy decision to make.

Hello KLM000

we have considered 2 - 3 surgeons with MRI reports.

2 of them have different opinion than the Surgeon who is going to do surgery.

as per both of them we should wait for 4-6 weeks and get a new MRI done.

We are still in dilemma. We will have to take a decision soon either now or after second MRI.

thanks for your suggestion.

good night