Hello and thank you for allowing me to Post. Last year, I started having vision issues and these head pains. Not head ache but pain in certain areas of head that would come and go. I was referred to a neurologist and had a ct scan done and an mri. Both were fine. I was diagnosed with an optic nerve drisen. Basically loss of peripheral vision. At my last check up the ophthalmologist tested pressure in my eye and looked at my eye. He said “I think we are on the right path. Sometimes we get the diagnoses wrong but I think we are on the right path here.” Last year I was obviously worried about a brain tumor. About 6 months have gone by since my last appt with the ophthalmologist. I started having the same head pains and I told myself “I’ve had this before and it was fine.”” I also have anxiety and my neck muscles were super tight. I began thinking about symptoms of brain tumors but kept trying to push the thoughts away. The head pains are pretty much gone. But now I notice my vision is off. I think I’m seeing double vision up close. Not when things are far away. Just if I look at something (like my hands) up close. But then when I focus my eyes, it’s no longer blurred. Do brain tumors that cause double vision always have double vision or are you able to focus your eyes and make things clear? I also have had sinus pressure and ear pain. I notice the vision most when something is moving and then I have to adjust my eyes and then everything looks normal again. Does this sound like it could be a brain tumor? Anyone with any experience with this symptoms before I go bugging my dr again? I have another check up next month with the ophthalmologist. How worried should I be? Thanks for any and all advice.
Hi petbj913
a warm welcome to the group. Sounds as though you have had a tough few months with a lot going on there.
Personally, if I were you, I'd go back to doctors with your concerns and tell them what you've explained here. Without imaging and proper medical training no one can say for sure what's going on. If it can't wait till you see the ophthalmologist next month, call your GP. If nothing else it might put your mind at ease.
There is also an Ask the Expert section in this community who may be able to offer some general guidance.
This is a safe and supportive space so please reach out here anytime. There's always someone around to listen , hold your hand and offer that virtual hug when its needed. You're not alone
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now, I'm sending you a huge virtual hug. Stay calm. Stay positive. Stay away from Dr Google. Hope you get some answers soon.
love n hugs
Wee Me xx
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