Grade 3 Glioma- Leg/foot weakness

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Hi 

First time poster here. I had a large grade 3 frontal lobe Oligodendroglioma diagnosed in February 2022. Ever since surgery to remove the bulk of it, my left hand foot has been feeling numb as if i'm walking with a large sponge on it (not unusual). The surgeon said this was temporary and feelings would return. Nearly four months on the numbness is still there and I can feel myself walking with a limp. Has anyone else had the same experience and has the limb returned to normal? (FYI I've had 30 sessions of radiotherapy and am about to embark on 6 months of PCV Chemo). I'm on a low dose of Dexamethasone and daily Keppra.

Thanks

  • Hi HenryTheBear

    a warm welcome to the community.

    Your symptom aren't something I have experience of but if you are concerned I would strongly recommend talking to your CNS or GP. This group is a really supportive space so I'm sure someone with more relevant experience will be along shortly to offer their words of wisdom.

    I'm supporting my husband through his GBM4 journey and this isn't an impact he's experienced but everyone is unique here.

    It’s always good to talk so please remember you can also  call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    sending you a huge virtual hug, Take care

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thanks very much Wee Me. Sorry to hear about your husband. Had a very positive response from Macmillan during the couple of calls I've made to them. 

    Best wishes

    HtB

  • I'm a little late, but I had the exact same thing as you, Henry - Oligodendroglioma grade 3. Had surgery and radio. I was on Dex and Keppra and I think it was during this time that I felt the same, "spongy" type feeling in my left foot/leg, and it is a scary feeling. Fortunately, mine went away. I can't remember the exact timeline, but it was a similar time to yours, maybe it went away a tad quicker, but not a lot in it. But, obviously (I'm sure you have got it checked out by now) get it checked if its concerning you.

    Best wishes,

    Aaron.

  • Thanks Aaron- that's reassuring to know and glad to hear yours has cleared up.