Cancer diagnosis after being told everything looked fine

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Hi there, new to the group. I have suffered with stomach pains, bloatedness when I ate and then started losing weight. Went to docs who said it was either IBS or my endo so suggested going on pill, I did not want the pill and knew it wasnt that but had tests and scans for endo etc. I also told him my father and two aunties had bowel cancer but he said nothing to that. Blood tests were found to be severely anaemic to which I said I had been for years but kept getting given iron tablets. Anyway forward on to another doctor who I spoke to and asked but why are you anaemic to which I said ive never had anyone find a cause so i dont know, he asked me if there was any bowel cancer and i said yes, he said i needed a FIT test. FIT was 66 so was called back in to which I was told not to worry loads of people have positive tests and are fine. Colonoscopy scheduled for two weeks and found 6 polyps, removed 5 and left one which was 40mm still nothing really said, big one removed two weeks later and noted no cancer evidence. Forward four weeks and i am being taken into a room being told they found cancer……so shocked! Had my CT the following day which was a week ago, MDT team met yesterday then called me to clinic which is Friday this week. Just cant believe it thought i was going to have a panic attack when she said it wasnt good news, no idea whats going to happen but even if its clear I want a resection now I just do not trust the ‘everythings fine’ anymore and the slim chance of cells being missed will always haunt me. Has anyone had a similair experience at all, they said my margins were clear but she also said microscopic cells can be missed. Can i request a resection for my peace of mind? Ive got a massive family history of cancer also. Thanks

  • Hi  

    Welcome to our community, I hope you find it both informative and supportive.

    Sorry to hear about what you have been going through, my experience of cancer is via my wife who has Leiomyosarcoma but on the road to that diagnosis she had really bad gynacological issues that ended up with her getting sepsis and ending up in ICU. Then it was quite a few months before the doctors actually came up with a cancer diagnosis.

    Sounds like your first doctor was very unhelpful and while since then it sounds people have tried to be helpful there reasurances while well meaning seem to have been misplaced.

    Sorry I cannot really answer your question about the recsection, perhaps it is something you could ask using our Ask a Nurse group where one of our professional nurses will get back to you.

    <<hugs>>

    Steve

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