Hi all, I am about to start chemo on weds, having folfox treatment for bowel cancer. I am so scared, its constantly on my mind, giving me really bad anxiety. Any advice plz x
It's not as bad as you think it's going to be is my comment. The picc line is a bit of a pain in the proverbial (especially when you have the pump at home as you can't shower at all for one day), but they'll give you meds for managing the worst side effects. The steroids (avoid sickness) can make for a sleepless night or two as well.
However chemo has a very bad reputation and things have changed alot over the years. It's unlikely you'll experience all of the possible side effects. I'd suggest going in with an open mind to it, you might find it's nowhere near as bad as you think. Yes it's not super wonderful and i was very happy when it was over, but it's not super awful either. I may need more but I know I'll cope.
I personally found my trips to the unit uplifting as you get to know lots of people stories and you know you are not alone.
In terms of tips
Get some good cream to keep your skin hydrated.
Take a scarf for coming out of the hospital after the infusion.
Wear socks
Get some fingerless gloves for going in the fridge (the oxyplatin makes you more sensitive to cold).
Take the meds as they suggest.
Still have a life - just be careful in cold/flu season (I still went dog training and out for lunches I just used hand sanitiser and was sensible about where I went/sat etc).
If you like to exercise then running is the one you can do and exercise will help with the fatigue, walking does that too.
No - it is thinner and lots drops out but I still have a full head of hair. I think for most people it thins rather than completely goes.
I usually found it best to start the conversation :-) No point in sitting there all miserable that will just make you feel worse. Most people wanted to join in but didn't know how to start the conversation - I found just a smile and a hello was often enough. Some people just shut me down and didn't want to talk and that was ok too as it's each to their own when going through that kind of thing. Most people were happy to chat though as it passes the time.
As you'll read, I actually enjoy going to chemo as the nurses are cheerful and the atmosphere is upbeat. There is comfort in knowing you're amongst others in the same boat, even if you don't actually get to speak to them.
My side effects have been relatively minor but please do take all the anti sickness meds they give you exactly as they tell you, even if you don't feel sick, as it is easier to prevent sickness before it starts rather than try to stop it afterwards.
I wish you all the best with your treatment. You may be surprised that it's not as bad as you thought.
