Colonoscopy results

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Hi after 8 months of investigating stomach and back pain I was finally sent for a colonoscopy, last Tuesday  I was told i have cancer the end of my colon by small intestine, no report so I have asked for it, she said they have done biopsies and informed everyone who needs to be involved, ive been mistaken for kidney or gallstones, but my bloods test and scans where all ok ,ive never seen blood and even had a fit test in april which was only 9, they dicuss me friday ive also had the ct scan , its on my notes malignant, so I need to know how are they so sure? My nurse rang and she also said they just know , but im confused how without the biopsys? It's been growing outwards so apparently thats better but im so confused, the team meet  friday but then I have to wait to go in for an appointment with them, any ideas or advise please 

  • After my colonoscopy I was told they had found a tumour.  They were doing a biopsy and I also had a CT scan. Then had to wait 3 weeks for a meeting to be told it was bowel cancer. I am going to have Immunotherapy to try and shrink the tumour.  Waiting for another meeting to find out when this will start. Stay strong and good luck

  • Thank you 3 weeks wow that's stressful, so sorry your going through this , good luck and thanks for replying 

  • Hi  They told me after my colonoscopy that they were 99% sure that what they’d seen was cancerous. I suppose they do these procedures day in and day out so can tell from experience what they are looking at - the biopsy results confirmed this. 

    The MDT will meet once they have all your results back and decide on a treatment plan for you and then things will honestly feel a bit better. Bowel cancer is notoriously slow growing and is very treatable. I was diagnosed 10 years ago and I’m still cancer free as are many others who’ve passed through the board and are now getting on with their lives.

    Ive attached a link to a booklet that I was given at my first meeting which may help with terminology, questions to ask etc.

    https://bcuk.adidocdn.dev/Publications/Bowel_Cancer_UK_Your_Pathway_V10.1.pdf

    Hope this helps and feel free to ask anything

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Thanks for this yes they meet on friday , then give me an appointment date