Hello,
Ive been lurking the forums the last week since visiting my GP and thought I would say Hi and start a post. Reading through lots of others posts and older posts have been helpful at easing anxiety so I thought if I started a thread documenting my timeline and hopefully good outcome perhaps it may help another in future to read. So hello!
I am a 36 year old mother of two. For the last year I’ve been experiencing small patches of blood when wiping but I suspected it was as probably piles as I’ve suffered on and off since pregnancy with them. Also started to notice my usual what I assumed was period pains then turned into ovulation pains and then eventually turned into just constant pain, especially after eating, and the on off nausea has turned into all day nausea, no vomiting just that constant light nausea putting you off your food. Since Christmas so 5 months ago I have noticed my bowel movements just aren’t right, sometimes loose and narrow and very dark in colour and sometimes constipated with the blood. I’ve never had huge volumes of blood or noticed it on the stool just dark stools. I’ve also been battling extremely low ferritin levels of between 10-20ug for the last 2 years struggling to get above.
So last week I finally saw my GP who agreed it wasn’t right, she performed a rectal exam which was normal and no hemorrhoids noted (although I know you can get them internally that an exam wouldn’t find).
We had recent bloods within three months to refer me straight away without FIT test results to accept me on to lower gi 2ww pathway based on the IDA.
The lower GI clinic moved me to urgent suspected cancer IDA pathway instead but I’m slightly concerned this will be the wrong clinic now as my FIT test result came back yesterday at 34ug so I think it will have been better under the GI team given the positive result.
Both clinics are 2ww clinics so fingers crossed they will both have the same investigations anyway.
So in terms of timeline for other people who are interested
28/04 visited GP who arranged FIT test and more bloods and made 2ww referral
05/05 telephone call from hospital arranging telephone triage appointment with IDA nurse for 12/05
05/05 FIT results back (5 days later Inc weekend and bank holiday)
12/05 first telephone consultation.
I will make sure I keep this updated as a diary to help anyone else going through these investigations.
I am aware the next step will be colonoscopy and potentially endoscopy at the same time, any advice for that will be greatly appreciated!
I’m feeling positive right now and have good support from my husband and close friend. I don’t feel ready to tell other family yet as I feel it may cause uncertainty and unnecessary worry for them.
I am hopeful this will be something less sinister with my younger age behind me and a lower FIT score than most I am leaning towards it being something treatable or nothing at all.
Best of luck to you all and thank you for reading.
Hi PineappleSmoothi and a warm welcome to the board. Yes your post is a great idea and will be really helpful to others just starting out. You sound to be in a good state of mind and if it does turn out to be bowel cancer then there is a lot of treatment available.
The prep for the colonoscopy is often the worst part! Most people are given moviprep which involves drinking large quantities of a salty lemony liquid which will clear your bowels out. It helps to drink it cold and I used to take a couple of big slurps through a straw then have a drink of lemonade or tonic water with lemon to take the taste away. They do say that you can add cordial to the mixture (but nothing dark coloured) but I’d try it in a small amount first in case it makes it worse. Stay near the toilet and have soft toilet paper, wet wipes and soothing cream ready - eventually you’ll just be passing liquid but it’s still important to finish both doses.
You’ll be offered gas and air or mild sedation for the colonoscopy. The mild sedation is through a cannula in your hand but you’re awake and can watch what’s going on on the screen if you want. You will need someone to take you home and be with you for 24 hours after (but not necessary if you opt for the gas and air) You’ll then go to a recovery area where you’ll be given tea and biscuits or toast and then a nurse will discuss what they’ve seen with you. I was told there and then that they were 99% sure that it was bowel cancer and the biopsies that they’d taken confirmed that.
Hope you get an appointment soon and please let us know how you get on?
Take care
Karen x
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