Hi, I was diagnosed in September with stage 4 colon cancer, 60mm tumour, spread through the lymph system but not yet any other organ. I was and still am, so very healthy, and I had no symptoms. All my NHS 'poo tests', even the one dated 2024, were negative. Initially they were hoping it was just localised lymph nodes and I was preparing for surgery so it was a huge shock to be told, nope, no surgery just immunotherapy for 2 years to try and prolong life. I get an infusion every 6 weeks and I just received the first CT scan results after 3 sessions which already shows a positive response, with one lymph node reducing from 1.4cm to 0.4cm. Don't get me wrong, I am very pleased, as are my husband and all my friends. But I am also scared, at what point will it stop working and my world crashes again? Is anyone further down the immunotherapy road? How are you coping? Thanks, L x
If you look up Moi2 you might find it an encouraging read . It’s been amazing watching her journey .
And Well done you . That’s so encouraging and only normal to get concerned about the future . Hopefully with time it will ease for you . We found with my mum normal life did it’s work and squeezed back in .
Take care ,
Court
Helpline Number 0808 808 0000
Dear Court, Thank you, I read Moi2 and her journey and positivity just shines through. Her immunotherapy drug works similar to the one I am on, which gives me hope. I think having the infusion every 6 weeks is so helpful, I have a long gap in between to reset and get back to normal life.
And today the sun is out... it really helps to see early spring. Lx
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