Hi all,
I’m in my second round of chemo folfox for rectal cancer. Today I am experiencing severe hair loss, I was told might get some thinning but seems more that.
Has anyone had similar and did it lead to complete hair loss as need to prepare myself if that happens. Been pretty upset today at the prospect.
Tia
Hello Tia
I lost a lot of hair while on fortnightly Folfox last year from July to December. The doctor described it as thinning. I used to have very thick long hair and it started shedding from the roots top, sides and back. Despite using baby shampoo and a soft brush my hair kept breaking which was very upsetting. It started to grow back curly and frizzy this year as I was on maintenance chemo of Cetuximab and 5fu. Unfortunately one of my tumour markers has been rising since September and following MDT last Friday I am expecting to be told that I will need to go back on Folfox or switch to Folfiri which presumably means my hair loss will begin again. I was not offered cold cap and presume this is because I have to wear a chemo pump for 2 days after each infusion.
Hopefully you will not lose too much hair 
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