Stage 4 diagnosis

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Hello Wave I'm new to the forum I'm supporting my mum recently diagnosed in October. Unfortunately they couldn't get the biopsies from the colonoscopy. She's on day 5 of her treatment capecitabine. Getting discomfort and loss of appetite symptoms from her illness more frequently now. She's following the low fibre diet which isn't very healthy one. I've never felt so helpless, worried,  alone and scared, I don't know what to do. My Dad sadly passed away 4 years ago and she lives on her own. 

  • Hello Regent and welcome to the group. I’m so sorry you and your mum are going through this, and so soon after your dads passing. I received the same diagnosis, also in October but am on a different treatment.  However I am following a low fibre diet and have also struggled with my appetite. I have found tinned peaches palatable, and have been having mashed swede, white potato, sweet potato, turnip helps - all skinned and with some nice butter. Breakfast wise rice crispies, Greek yogurt and eggs (not all at the same time :) ) . I did swap anti sickness pills early on and the new ones have been much better, so do ring your team if you think that might help.  Sending lots of love at this difficult time, do keep reaching out, you’re not alone in this scenario there are a lot of us navigating the same and here to listen and help

    xxx A

  • So sorry to hear you are going through this as well Frowning2 I wish this wasn't happening to my mum and yourself.  Unfortunately I was unable to attend my mum's chemo appointment due to work commitments, I  can't remember which anti sickness she's been prescribed. The diet is the opposite of what's she's usedThumbsup, these food suggestions sound Thumbsupthank you. I can't bare to see my mum struggling and being in pain. I know she will be trying to put a brave face for meFrowning2️ I am missing my Dad more than ever. 

  • I can imagine how hard it is not having your dad here to help too. Everyone’s different but what I’ve felt most helpful is accepting the practical help, I’m very house proud and (sounds shallow) fJoyl much better when my sister has been round and help keep on top of things. I do have a husband, but he doesn’t do it right Joy although he tries. Is your mum accepting help/visitors? It’s important it’s not all on your shoulders too. If she’s in pain/ feeling sick/toilet issues, you/her should have been given a 24 emergency oncology number? Honestly they are fantastic, they will see her straight away and tweak her meds, they sorted me out in a few hours they’re amazing. Another food I thought of that’s helped is a banana a day- for the potassium. Avocados are good too. Hope you’re ok and looking after yourself too xx A