Newbie OAP

Hi Gadabout72d91e ,

im new here too , just finding lots of advice and very friendly folk ,

,Ive been visited by the big C recently for the third time , you’d think I be used to it , but I’m certainly not ,and can’t offer you any advise ,just wanted to say hello ,your not alone,

Hi Briars, I could be fascetious and call you greedy, or accuse you of upsetting the national statistics, but I’m not that crass! I guess no experience is ever the same as another, I wish you well with your recent journey and thank you for taking time to welcome me

Hi Gadabout72d91e  and a warm welcome to the board from me too. I don’t know a lot - well anything if I’m honest - about immunotherapy and I’m sorry to hear that you’re struggling with the side effects. It must be hard to find a balance when you’re swinging from constipation to diarrhoea. Please talk to your team or colorectal support nurse about the issues that you’re having. They quite often start you on the ‘cheapest’ antisickness meds but there are others to try if these aren’t working - I’ve heard that Emend can be very effective. 
Please give the support desk a ring and have a chat with them - it’s open every day from 8-8 and the numbers at the bottom of this post.

Hope things settle down a bit for you - it sounds like you have a lot to deal with so please keep posting and we’ll help you where we can

Take care

Karen x

Thank you for warm welcome, Karen, very much appreciated  I’m a bit unsure of the many contact numbers I seem to have for MacMillan - do you know if there is a link between the general support line and the more local team based at my treatment centre? Don’t want to have too many lines of communication open and risk confusion ‍

Hi Gadabout72d91e You could ring the general support desk on the number below and see if they have a contact number for your local hospital? There is also a page on here where you can put your post code in and search for local support although this may be local cancer support groups, exercise classes etc.

https://www.macmillan.org.uk/cancer-information-and-support/in-your-area?pcode=

Thank you Karen, I’ve managed to speak with someone and am carefully collating the various departments in order of priority! Hard work this C lark!!! 

You could indeed, but happy to share!

looks like it’s going to be another sleepless night for mr.

and very quiet maybe a good sign for everyone else,

I’ll check back tomorrow