Colon cancer

  • 8 replies
  • 165 subscribers
  • 250 views

Hi I've been diagnosed with transverse colon cancer and am waiting for my op on the 5th November. And then the agonising wait for the final results and staging. I've been told I might have chemo as my my PET scan showed that there is either a possible spread of cancer into my peritoneum or that my lymph nodes in that area are enlarged. I am so scared. I had breast cancer 6 years ago..I feel I'm going to go mad with the waiting to know my fate.

  • Hello

    I hope you've managed to get some rest. The not knowing is really hard, and you feel like time has stood still. Try to remember the experts are working away in the background to make sure you get the right treatment.  Colon cancer is very treatable and lots of people do very well afterwards. Let me know how you are doing, I'm in a similar place so really understand how you are feeling. Sending lots of love 

  • Hi  Please try not to worry about the what’s ifs. Focus on your next stage of treatment which is your op where the tumour will be removed. Your next focus should then be on your recovery and then see what comes back from the pathology report? You may need post op chemo but it may that it’s a different experience to your previous chemo? 

    I know it’s hard not to worry but it won’t change the situation and you’ll end up exhausted. Focus on getting yourself in a good place for the op and take things from there

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi thank so much for replying, I know I have to be patient, and am trying really hard, I'm worse at night when my husband is sound asleep. He is trying to be supportive but is telling everyone once I have my op he will not be able to out because he'll be looking after me, and he is very much a sociable person. He seems to not want to talk about it and just says.. don't give it any of your time and that's that. Stupidly I've googled everything and yes scared myself., I'm the type of person that wants/needs to know what I'm facing, sorry for the rant, just frustrated that I'm on the cancer roundabout again.

    Hope you are doing ok x

  • Thank you so much for replying, I hope you are doing ok,

    I have been here before with breast cancer 6 years ago and sadly  had my husband..in remission for 3 years now with throat cancer. He is always always so positive, but I just want to know I'll be ok. I had a diverticula flare up in June and after waiting 6 weeks to get result was then told I'll need a scan to see if my perforation is healed before the would give my a colonoscopy for a positive FIT test it all seems like time is against me. The scan revealed a mass in my transverse colon, my colonoscopy confirmed this, biopsies were taken and polyps were removed, but I haven't been told what stage I'm at. 

    Sorry to rant, cancer touches so many, my heart goes out to everyone I just want us all to be ok 

  • Its awful isn't it. I've been told I'm Stage 3, but am waiting the outcome of the MRI as there was a small spot on my liver, they couldn't tell what it was via CT.  Our husbands sound similar, he's been talking about holidays and days out, all I can think about is the next hour. Currently watching a halloween film with my 2 young children.  When is your next appointment? x

  • Hi Cheryl 

    It must be a man thing :/ I have an appointment with the enhanced recovery nurse tomorrow. And the pre op nurse on Thursday.. then a wait for the 5th :/ We've been invited to a Halloween party on Saturday mine has asked if my girls would come over and keep me company while he goes to the party, but only if it's ok with me. I don't know what to say, I am not going as he's told everyone about me and I would feel like a lepper.all I can think about is the op. But he keeps asking.

    Your children are the ones that keep you going x The battle is on! Fingers crossed everything is ok for you. Thank you for reaching out xx 

  • Hi Sleepless nightse20cd2

    It's a toughie I know, the worst is the not knowing, your mind will be going twenty to the dozen (I know mine was), it felt like every turn I got the one in a thousand result but a corner will be turned and the care team will get you through. Keep positive, keep active, don't let it get you down there is always light at the end of the tunnel.

    Good luck