Rectal Cancer trying to find my new "Norm"

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Hi

As someone heading for his 75th birthday, and who has suffered from a number of medical conditions for over 20 years, (I already receive PIP for care and mobility), the recent diagnosis of rectal cancer threw me a fair bit. Following 3 successful Papillon treatments at Guildford, and 5 short Radiotherapy sessions at the Kent Oncology centre, I am trying to come to terms or better understand the side effects that I seem to be experiencing. The MacMillan team is pleased with my progress so far, but being up all night responding to my body's instructions to visit the bathroom for the last 3 weeks, is taking a bit of getting used to, as does genuine visits to the loo (solid matter departure time) from about 5:30am until about 10 in the morning. I get the feeling that these events need to be embraced as part of my daily routines and I need to adjust my lifestyle accordingly. I'm not getting the feeling that such things will disappear completely

Does anyone share a similar experience here? I would appreciate any helpful hints (or even crystal ball predictions at this point)

Many thanks  

  • Hi  Unfortunately I don’t have a crystal ball but I can confirm that your new ‘norm’ can be quite erratic I’m afraid. I’m 9 years old from a Low Anterior Resection and still haven’t worked out my triggers. I find too many cups of tea can cause very loud gurgling and wind and a large evening meal will set me off on my toilet runs. 
    Unfortunately everyone can be different so I can only make a few suggestions but no magic answer?

    Keep a food diary and see if some days are worse than others and if there is a trigger

    Have your biggest meal at lunchtime and nothing after 7pm.

    If you have loose stools then take 1 or 2 immodium/ loperamide 30 minutes before eating but experiment with this as you don’t want to get constipated. 

    There may be a few tips in this booklet 

    https://bcuk.adidocdn.dev/Publications/Bowel_Cancer_UK_Regaining_Bowel_Control.pdf

    Sorry I’ve not been much help but sometimes it’s a case of accepting your new norm and getting used to the signs/triggers

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi Karen062

    Many thanks for those tips- most useful. I will follow your most helpful advice asap