Colon cancer

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Hello everyone 

I have been diagnosed with colon cancer and have a tumour in my transverse colon. I have already been through pre op chemo with oxaliplatin and cepaciteabine, I had an anaphylactic shock with oxaliplatin but they tried again 2nd time loaded with antihistamines but still had a very bad reaction 

my surgery is this Friday for a right hemicolectomy, I am so anxious about the whole ordeal and would love to hear from anyone who has been through this and how they have faired and recovered. keyhole surgery hopefully 

thank you 

  • Hi Djay, 

    I had a left hemi colectomy last April, follow by 5.5 months of chemo. Mine was open surgery rather than keyhole. 

    you won’t be in any pain, as my nurse said ‘if you are, we are doing our jobs wrong’.  I was in hospital for 8 days.  I’m pretty much back to normal now, although a bit anxious as my annual checks start next month.  

    I still get a bit tired but that’s about it. 

    wishing you all the best for Friday! 
    CerysM

  • Thank you so much for replying, it’s all a bit overwhelming. So pleased you are well but yes I know how anxious the follow up check ups areConfused best of luck for that, my dad had the same operation at 65 and he is now 84

    this is my second time with cancer, first time was breast 13 years ago it’s all very inconvenient . 
    you have made me feel better about the op because it is the pain that worries me and the risks involved that I know they have to tell you but at the end of the day I have no choice if I am to beat this dreadful disease once again

    thanks again and best of luck

  • Hi

    can I ask was this all diagnosed instantly when you were having a colonoscopy?

    I ask as I am still awaiting histology of biopsies from my transverse colon too… the report said cancer found stay on pathway plus challenging sigmoid loop that wasn’t able to be sorted & no t1 intubation?

    but no one has said anything further except the team will be in contact shortly with a plan depending on the report results….
    surely it hasn’t taken 2.5 weeks for the growth despite initially after a week them already being ready to interpret results, then not?! It’s all very confusing being left in the dark not knowing what’s what.

    wishing you all the best with Fridays surgery, must be hard trying not to worry- plus the fear of reacting badly again/being left feeling dreadful.
    Speak out to your team about these concerns & previous reactions- I’m sure they have other options you can try instead? 

    wishing you luck

    Love C Xx

  • Hello there,

    they knew straight away from the colonoscopy that it was cancer but still had to do the tests and I had a weeks wait before seeing the surgeon with my results which were confirmed as cancer. The waiting is the very worst part so I do feel for you, it’s all quite overwhelming 

    thank you for your thoughts re operation, I am now nil by mouth till goodness knows when

    best of luck with your results wishing you well

    Djayx

  • Don’t worry. They will look after you and it won’t hurt. Only pain I had was trapped wind, so I’d take some wind-eze with you if you can. My cancer adventure began on September 1st and I am going back to work on Monday, feeling ready to slowly get fully back to normal. (I was fine with the oxalaplatin, it was the capecitabine that I couldn’t do as it made my heart go into spasm). 

    Take good care of yourself and I hope it all goes smoothly. 

  • Oh thank you so much, I’m so pleased you have gotten through it Pray tone1

    I had terrible reaction to oxaliplatin but seemed to be ok with capecitabine, all different are t we  

    hope you stay well

    take care x

  • Good luck tomorrow. Sending you love and support. x

  • Thank you Pray tone1 

    appreciated x

  • Much love to you Djay. As we contemplate the fragility of our existence, we naturally question the nature and purpose of reality.

    For me, my adversity had been my greatest gift. It has forced me to see the true nature of things and the people around me.

    I have longed for freedom and for the sight to see the truth and now my eyes have been opened for the first time.

    I wish you well dear traveller.

    Warmest Regards,

    The Golden Honest Onion

  • Hi there, 

    I didn't have to have the chemo, but had a left hemicolonectomy via robotic surgery six months ago - my experience is documented in my profile if you click on my name. I recovered well, with the only hiccup being a bout of ileus ('frozen bowel') kicking in 24 hours after the op, which wasn't pleasant. 

    I wish you well for tomorrow.