Wait for Colonoscopy. Waves of emotions.

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Hi all

This is a horrible time for me like almost everyone on this forum....been reading lots on here

I've had bleeding and change in stools for a while but it does come and go but more recently I would say it's becoming more common

There's not a huge amount of blood to turn the bowl red or pink but it shows up more like when I wipe...I'm not tired and blood test required no more investigation which I know doesn't mean much 

I'm fuming with myself as I don't know how long I've had this issue for....but anyway I have a colonoscopy next Sunday and I'm absolutely dreading it ...I dont weigh myself but my partner and I would say I'm putting on weight if anything

I'm not worried about the procedure at all just the results

Theres polyps in the family which to be honest I didn't realise until recently probably because I was younger and my parents probably kept the seriousness from me top

I just cant remember...not blaming them of course too

Anyway I'm 48 with a 10 year old boy and I'm just scared of the thought of leaving him...I know you will probably say it's stupid but I've kind of written emails to say how much he means to me already...he really is my entire world along with my partner. The thought of leaving them is indescribable.....again like almost everyone on here with loved ones..and as ive said in emails to them both that they are the only thing I'm proud of

Anyway my sister recently had a colonoscopy too and hers came back with diverticulitis....I hope it's that but I'm convinced I have a serious issue

We went on a mini break to London 2 weeks ago and thats when the worries really kicked in....myself and partner hardly slept and we look knackered  in the photos :)

I know we shouldn't google and I'm not now I've learned as much as I want to learn

Just wondering how people cope with the waves of emotions really .....its the wait that's horrible and your mind wonders to the worst case.. well mine does anyway and my family

I know I just need to take mind of it and deal with it when we get there but I just feel for everyone having ops and procedures on here....wishing everyone the best!!

  • Hope it goes well - the waiting is the worst and I was convinced it was cancer 100% convinced. So try not to jump to the worst case. I did - I really did.

    I feel a bit stupid now as I think I have worried everyone sick. I was sooo convinced, messaged my sister to watch over my boy - just horrible 

    We went for a walk on the beach the day before and I was in a daze like it was one of the last days out before the news. Horrendous feelings and I wouldnt wish that fear and dread on anyone - it was horrible. Tearing up again now just thinking about it.

    I knew what was important in life anyway but it dont half strike that home in a massive way. Family and your health is all that matters - it really is

    Wishing you all the best...I really am and Im sure they will be able to sort you out

  • Hi all - had the large polyp removed on Monday - was a bit more unconfortable this time but it was still fine overall - just gas and air too, they tattooed the area they said

    Nobody has mentioned cancer yet in fact I did ask at the first colonoscopy and they said no....but it is being sent away now for biopsy - is it a two or three week turnaround generally for biopsy results?? Just managing my expectations. What happens then do they call you in or do you get sent a letter?

    I have to go back to do it all again in three months to remove some smaller polyps too - cant remember the number 

    Ive been fine in general but getting a little scared again.... the big one has me bricking it - just for my boy again really hes first and formost in my mind immediately followed by my fiancee

    So just seeing what timescales we are looking at really - on a postive note its kind of almost a week already - just didnt get much sleep last night!

    Thanks

  • Hi Kiteboy. I can totally relate to your anxiety. Take a look at my post on controlling anxiety and panic: https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/general/274907/controlling-anxiety-and-panic the hospital link on there has some excellent info and relaxation audio files which really helped me cope with the what ifs, pre colonoscopy fears etc. I'm now through 2 colonoscopies, a colon resection and on my penultimate cycle of chemo. The nursing and surgery staff were so caring and understanding that most of my fears were totally groundless. I hope all goes well for you.

  • Hi Kiteboy,

    So sorry to bother you 

    Your story is so similar to mine 

    desperate for good news story’s to get me through whilst i to await my colonoscopy 

    I have a 10 year old also, and spending time with him makes me so scared and guilty 

    Are you ok and is there any update ?

    Luke 

  • Hello, when I found a bit of blood, I knew right away it was serious, I was right. I find Google to be quite helpful, you just have to not think all of it applies to you, it might be might not. That's just me, I hope the best for you!

  • Oh know, this fills me with more dread 

  • Hi - well im still waiting for the results of my biopsy. Its comming up to a month now for the biopsy results...in Wales or where I am it can take up to 12 weeks which is torture really...so theres not much I can do about that. I have tried calling people but its pointless. Just have to wait now.

    I have been thinking the worst all the time to the point where I just run upstrairs some nights to give my boy a cuddle out of the blue before he goes to sleep and tell him how much I love him.... so yeh its been tough really 

    Luckily Ive been distracted by my missus giving me some DIY projects so thats taken my mind off things for a bit

    They did get a big 3.5cm polyp out though and I have to go back in 3 months for a site check and to get a few smaller ones too. I think in a lot of cases they can tell just by looking. I "think" mine looks OK visually but of course they still need to check it 

    Since the procedure though I have been struggling from time to time. However at the moment Ive just gotta get on with it whatever the outcome really. I know thats easy said than done but you just have to get your mind off it really

    I have googled the different types of polyps, ie Kudo types i think it was but its all research articles more or less so your no better off anyway really

    As far as I know there is a risk yes....but you just have to wait .....if my results are bad then yeh Ill probably go to bits but even then you still have to get on with it - its scarey as though and puts everything into perspective....like most its brought home how much I love my family and how much they mean to me

    Hope it goes well though and try not to think the worst ....I know its hard....but also try to take mind off it too....it will drive you crazy otherwise. Ive really been there and if results are grim Ill go there again Im sure but the worry and stress arent good either so try to take it as it comes I suppose.

    I will update as things move on - the waits are horrendous though!!!

  • Thanks for the reply 

    best wishes to you and i hope all goes well for you in the future 

  • Just had my thrid colonoscopy just now. The doctor said the large polyp was high grade dysplasia which I gather is kinda good news I still havent had any official results after 8 weeks

    The site check was OK today they also removed 8 smaller polyps too and there was one really small one left that is a complex one which Im booked in agan for in July and for them to think about in meantime

    So I feel this is great news all round - theres obviously history in my family that to be honest I felt was kept from me or maybe not talked about or explained too much - not blaming my folks at all I may also have been oblivious to the process and seriousness too as I was much younger then too

    I now know all the syptoms to watch out for and any sign really you should just go and get checked - ive basically told everyone approaching 50 to get checked

    So anyone thinking of going for colonoscopy - just go its a bit uncomfortable but you have to get on with it

    Im due back on a yearly schedule now which is great to keep on top of things. I made sure they know the family history

    I felt really grateful to the people today for what feels like saving my life (they have) and I made sure I at least said thankyou to everyone in that room - they are heros....what a brilliant job (ok not glamorous) but what a job to save people.

    I also had the camera down the throat for something else that runs in family for the first time today too and that I found bloody horrendous - felt the size of a garden goddam hose going down lol and the gagging was bad - BUT you have to get it done

    So had that done and yeh they found inflammation that needs supressing so its good news that everythings getting a look!

    Im keeping thoughts and prayers with everyone and hope you or family members can pull through everything your having to deal with.

    Pob Lwc!

  • Hi,

    any updates? How has everything gone. I’ve noticed on two occasions blood in my stool. Had a fit test which came back positive. Although I’ve just realised I’ve been spotting from a miscarriage that I thought stopped but in actual fact was still spotting. So don’t know if this effects my fit test results and if this was actually the blood I saw on my stool. I’m still going to follow up with the colostomy to be sure anyway