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Hi I have just joined after seeing an advert on instagram. I was diagnosed with bowel cancer late November. My only symptom was eating loads of ice. Someone suggested I was anemic so I had a blood test. Apparently anemia is usually the only sign of right side bowel cancer. I had surgery to remove over a 3rd of the large bowel on the 13th Dec and home 3 days later. I had keyhole and resection so went as well as could possibly hope. I will find out in a week or so if it’s in the lymph nodes and scan did not show it had spread. Luckily some kind of mental block has set in and I talk about it as if talking about my car and do not seem to comprehend what is happening. I am scared of reality setting in but also if I am lucky enough to be clear, how do people live with the possibility of it returning hanging over them constantly?

  • Hi  and a warm welcome to the board. I can imagine you’re probably a bit shell shocked by it all and now you’re home recovering from the operation you have time to reflect on what you’ve been through. 
    Everyone goes through the worry of it returning but you will have regular checks over the next 3 years and each clear scan/blood test will push the worry a little bit further back in your mind. I’ve attached a link to a paper about moving on after cancer which a lot of people have found helpful and also a link to a post about dealing with the stress of follow up scans etc.

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

     Managing your follow up & CEA

    there is also a Life after Cancer page on here and The Highlander has lots of advice

    community.macmillan.org.uk/.../life-after-cancer-forum

    Hope your biopsy results come through soon

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi Sue,

    I hope you are recovering well at home.  I had a lower resection by keyhole on the 15th December and was home the following Tuesday.  Your description of how you are feeling sums up exactly my own state of mind.  It’s almost like it’s happening to someone else and I’m watching it all unfold.  I suppose it’s not a bad thing as it’s probably helped get me this far, I don’t know if that resonates with you?

    I am awaiting my results to see what follow up treatment I need.  I’m just wondering if at some point I’m going to have a ‘Christ I had cancer moment’ and for it to hit me like a tonne of bricks.

    Your last question is one I’ve gone over increasingly since I came home.  I’ve tried to draw inspiration from the wonderful people on here, some who despite knock backs not only keep going but share their experiences so we all feel less alone.  Then there are those who get the all clear and it’s so heartwarming to read.  When I was initially diagnosed I was adamant I was going with the ‘why not me’ approach instead of why me’.  I am going to try and carry that forward into the next phase of my journey.

    I wish you all the luck in the world with the next next step and a very Merry Christmas.

    Craig 

  • Hi Craig 

    thank you for you reply. We seem to be in exactly the same mindset. I thought maybe it happens with everyone but I have spoken to people who have cried and worried constantly after diagnosis, so I feel very luck to have developed this coping mechanisms. Like you I don’t bother with why me or what ifs, and like you I am scared of it hitting me like a tonne of bricks. Good luck and let me know how you get on x

  • Thank you so much

  • Thanks Sue and likewise please keep us posted with how you get on. Merry Christmas x