Side effects

Hello EricNHL

I am sorry to hear that you are having some issues with Cetuximab. 

The best person to speak to is your CNS and it is worth giving them a call about the rash. I was given a phone number to call while I was having my chemo and rang several times to check things out.

Hopefully they would be able to reassure you and suggest something to help. 

I have found some info on the Cetuximab and it does suggest speaking to the hospital if you develop a rash.

Cetuximab (Erbitux®) | Macmillan Cancer Support

Hope this helps

Jane

Hi EricNHL As Jane says it’s best to ring your 24 hour chemo help line - it’s not just for emergencies. You could also try typing Cetuximab in the search box at the top of the screen to see previous posts like the one below

 Skin side effects to Folfiri/Cetuximab chemo for stage 4 colorectal cancer 

Take care

Karen x

Hi Jane. Thank you so much for your time and support. I’ will get on to this first thing tomorrow. Once again thank you and I hope you enjoy the rest of your day 

Eric 

Hi EricNHL 

I’ll tag court as her mum is on this and had the issue you describe. Hope you can get some good advice from her!

Sarah xx

Hi Karen. Thank you for taking the time to get back to me. Your support and advice is much appreciated 

Eric 

Hi EricNHL 

My mum has been using Cetuximab for ten months now . She did break out in a rash  initially.

Looked red like acne but isn’t ! 

She gets continuous antibiotics that prevent the severity of the rash . She also has a steroid cream she keeps in the fridge for bad flare ups . And uses special washes .

She gets creams for general use like Aveeno but prefers Altruist she buys herself .

If you have all of the above you can get a dermatologist involved .

My mum’s stated visible for around six weeks then reduced .

One observation has been unlike chemo where the side effects accumulate it feels more like each cycle one side effect emerges then recedes . Then an entirely different one pops up . Mum I only have Cetuximab so it’s easier to see what’s causing it .

A few cycles in and it became very manageable and has given her ten months of not having to have full blown chemo . We have been very encouraged by that .

Take care ,

Court