I’ve had stage 4 bowel cancer since feb 2021. I’ve had lots of chemo, immunotherapy and lonsurf. I have the braf v600 mutation so difficult to treat but I’ve run out of options after finding out lonsurf has failed. I haven’t gone down the rabbit hole of how long I have left I’m just trying to get organised. Anyone in the same position?
https://community.macmillan.org.uk/cancer_experiences/living-with-incurable-cancer-forum/
Hi Sarahzed
You might find this group helpful . All different types of primary cancer but at a similar stage in treatment . There are some longer term stage 4 bowel cancer patients around on that forum the last time I looked . It is strictly a patient forum to give freedom to say exactly what you want .
Take care ,
Court
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