Hello dear all group members and nice to here and meet all off you.
i have had my second bowel operation 28.12.22 because my bowel function are not working and look like freeze like concrete and doctor decide to open loop jejunostomy with high output stoma connect and open a central hickman line for-my feeding they put me 4 Lt TPN every day. Since than i was stay in hospital about 2 months than discharge home to do all my duties my self. Also i have small metastasis spread to my liver i have had Lanrotide injection since May 2022 than they stopped because look like does not help stop growing this tumour reason of this all my pet scan show clear buy unfortunately not my tumour NET without somatostatin receptor and not catching anything to stop growing.
An way since July 23 i am more or less ok get use to live with this accessory. 15th July i same reaction start again sharp pain on lover belly cramps on bowel and hardly vomited by my self since early morning i feel i have to go my big toilet hardly i have done little but strange things i have had eating plum last night and this plum come out with my poop and i am shocked. Still i have very severe pain than went to hospital they check everything and they said i have bowel obstruction again but how answer is food leak to your bowel but how not any one give me right answer. Since than i am not well feeling so weak and lost other 6 kg in 10 days. I couldn’t eat anything last 5 days at all even drink water give me a pain. There is not any explanation for this issue to me yet clearly.
I am very sorry take a bit mess and long story.
But does anyone try alternative treatment from a natural health professional or any other immune system support. Because they have not any kind of treatment to start for me because of nature of tumour.
please can you share your experience with me if you not clear anything please ask me to explain to you.
many thanks for all of you
Hi Umut,
Thank you for taking the time to post in this forum. I'm Dylan and I work in the online Community. I wanted to reach out to you while you wait for other Community members to reply.
How are you doing today?
I was sorry to read that you have been struggling lately with eating and drinking. Have you been able to speak to your doctor about your most recent symptoms? Do you have other forms of support, Umut?
In addition to speaking to your doctor or nurse, you could chat with one of our cancer information nurse specialists if you think that would be helpful. You can contact them on our Support Line. Our support team are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.
I hope you are able to get some good guidance soon. While we do allow for conversations about alternative treatment, I just wanted to include some of our Community guidelines below. These are in place to help keep the Community safe while these discussions take place.
When discussing alternative and complementary therapies, you may:
When discussing alternative therapies, please do not:
If you have questions or need support with the online Community, please feel free to get in touch. You can either message us via the private messaging system, or you can drop us an email at community@macmillan.org.uk.
Best wishes,
Dylan
Macmillan's Online Community Team
