Hi Kerry17 I hope you are managing okay. The waiting for starting treatment is really hard, but I suspect even harder for our loved ones. I try really hard to be mindful of my parents and ex husband’s feelings when I discuss my treatment and experiences. I’m sure I don’t always get it right! I’m glad you’ve found us. Try not to beat yourself up about not telling your children. You do what you think is best for them. Take care.
My dad is just taking it in his stride to be honest! He’s old school and doesn’t show emotions, but I can see in his eyes he’s worried. And I think that is what makes it so hard aswell. His treatment starts in 2wks time just hoping he doesn’t feel too poorly. I’m so thankful for your message and support
Sending love to your husband, I hope he is doing ok. My children are 13 & 15 and my dad is there idol they adore him so made the decision not to unless we really need to as I know how massive it has effected me. Sounds like your kids are how I am, I need to know everything but then when they tell me I question are they not telling me something to protect me so I end up more anxious at times
Hello, my dad finished his 2nd round of Folfox out of 12 and pump was removed last Monday he found this one abit of a struggle tingly feet and fingers and loss of appetite. He’s due his bloody next Wednesday ready to start his 3rd round the Friday! He has been having telephone calls the Thursday before he starts his chemo from doctor but this time he’s got to go to oncology on the Thursday before just wondered if this normal ? My mum is worried that they calling him in as they said would review after 6 rounds of Folfox and he’s only had 2 and want to see him so obviously has put worry
Hi Kerry. I had a couple of meet ups with my oncologist during my chemo just to check how I was doing. She was running behind one day so came and sat in a chair next to me while I was having my iv! x
Oh really , that’s good to hear! I did think maybe just to see and talk properly how he was doing but everything is just a worry. And my dad is so proud and won’t really say if he’s struggling. But could tell these last few days he’s not really done anything or really wanted to eat he’s had to be forced really to have food. Going to get him some shakes for when he doesn’t feel like eating. He managed to go out with mum today for a walk to that’s promising
I know - your mind goes into overdrive doesn’t it? If he hasn’t had any scans then there’s only his treatment to discuss isn’t there? My white cell count was often low so I had to miss a session then they lowered the dosage to help. Going out for walk is great - it’s hard to make the effort sometimes but worth it.
The shakes are great for getting calories in if he can face them. Sometimes little and often is the key - he could have a little meal for 1 and then a pudding an hour later if he fancies? There’s some good ideas on this page
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