Hi, my mam was sent to a&e a month ago for what she thought was to see if she had chest infection,(there was no gp appointments so 111 sent her there!) She had various tests done and xray, they said it was clear she could go home! A week later she got a phone call from a&e doctor to say the radiographer had another look and picked up something in the corner of her lung and she needed a ct scan. scan confirmed that there is a tumour, and they saw this mass 12mnths ago but thought it was just a harmless nodule but it had to be checked up on but no one ever did. It was 11mm at the time and now is 26mm, there is also multiple nodules on her lungs and they suspect they are cancerous too , and also cancer in the bowel lining which is at the head of the pancreas. She had bowel cancer 2 years ago and had 2/3rds of her bowel removed which was successful. All tests show its not come back in her bowel. They now say she is stage 4 and its just palliative chemo, but mam is absolutely fine, has no symptoms and doesn't even feel ill, we have opted for a 2nd opinion, just hoping for a small miracle that if chemo shrinks the tumours that she could have a lung resection or something. My sister died of bowel cancer 10 years ago and her little boy was 4 at the time, my mam and dad bring him up so its so unfair that he is having to go through this again. Amyway sorry for the long post, i just needed to vent amd get it all off my chest.xx
Hi
Welcome to the forum . I am so sorry to read what your family are going through and also what you have gone through with your sister.
I am glad you reached out as that’s a lot to process .
In terms of your mum and the spread in her lung it really does depend on location and numbers . My own mum has had a lung resection in the past and it was very doable as she had a procedure called Vats . There are also techniques like radio frequency ablation that can target isolated mets . However if the spread is larger they often like to tackle it systemically so they are hitting all areas at once .
Can I ask if you have had any genetic counselling as a family ? Have they carried out a Lynch test on the tumour . This should be done now. You also might like to talk through a screening program for yourself . Our helpline staff will be happy to chat it through with you on 0808 808 0000.
You might also like to find out a bit more about your mum’s cell type as it streamlines the best treatment approaches for her . Some people are now suitable for immunotherapy and we have people on the forum doing very well on it despite a spread .
My own mum has just had a reoccurrence in her lung and some lymph node involvement. Such a blow but we are hoping to see her oncologist in the near future .
Some treatments have emerged since your sister went through this . My mum was originally diagnosed back in 2009 . I will link in a good booklet to let you read up prior to the second opinion . It’s always good to hear what some doctors are achieving .
But definitely find out if she is suitable for treatments like immunotherapy as it’s worth finding out the best approach for her .
Take care ,
Court
Helpline Number 0808 808 0000
Hi court, i looked into the radiofrequency ablation and the results seem good, i think at this point mam is open to anything to save her life.. on her letter from hospital it says she has metastatic colorectal carcinoma (lungs/mesentarty) pt4n1a 1/12 moderately, differentrated adenocarcinoma, no venous invasion, microsatellite stable. No clue at all what all that means lol. Shes awaiting the test results for dpyd, last time she could only have 1 round of chemo as she reacted really badly and was told she had a gene that could be fatal in she carried on with chemo! So she has limited options with regards to which chemo she can have. We are totally devastated as a family, cancer is the devil.
Good she is getting tested now . My own mum reacted badly to chemotherapy but did not have the gene and they were able to reduce the dose to a level she could tolerate . Also if she does have the gene the Nice guidelines have some options for one they can tolerate . I will link in process as her husband managed a spread successfully with it .
Your mum’s cell type is similar to my own mum’s. The radio frequency ablation is interesting reading but I think won’t be suitable for my mum due to the lymph involvement. Such a pain but hoping something can be done to stabilise it .
If you click on process name you can read her bio . Although adjustments had to be made it did the trick in doing what needed to be done . Despite all the chemo combinations now on the market my mum has only ever had one combination over two years. It just has to be the right one for them .
Holding out for a good plan for your mum . My mum was stage 4 back in 2009 so there is hope .
Court
Helpline Number 0808 808 0000
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