Hello

FormerMember over 3 years ago

2 replies
170 subscribers
491 views

Hi Everyone ,

Just been diagnosed with Rectal cancer that is low and close to anus ,it has not spread anywhere else according to CT scan results but could be in lymph nodes so Nurse thinks it could be Stage 3

and I will be having 5 weeks of radio/chemo therapy 5 days a week ,Surgeon says he will then discuss Surgery with me .

after reading other peoples experiences this surgery is quite radical ,removing rectum part of bowel and Anus

does any one have any experience of an alternative to this surgery ie Papillon

Thanks in Advance

Sonny

Kareno62 over 3 years ago

Hi and welcome to the board. Have you discussed Papillon with anyone? I’m not sure if it’s advisable with the lymph node involvement but you could contact the centre for advice?

https://www.clatterbridgecc.nhs.uk/patients/treatment-and-support/papillon

I’ve also attached a link to KevH’s profile - I don’t know if he’s still active on the board but his profile makes interesting reading

https://community.macmillan.org.uk/members/kevh

Hope this helps - the APR is a big op but several people on here have been through it and are getting on with their lives - you can type APR/APER in the search box at the top of the screen to see their posts

Take care

Karen x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

FormerMember over 3 years ago in reply to Kareno62

Hi Karen ,

Thanks for the reply ,Ill have a read of Kevh profile ,