Toilet troubles

Hi, I am new here and looking for advice.

I had my large bowel removed in 2014 due to FAPs (my mother and brother passed away due to bowel cancer) and a year later I had it reversed so I now have a J Pouch. Long story cut short, in the last 7 months I’m on my 4^th consultant, 1^st retired, 2^nd went on maternity leave, 3^rd went on long term sick and making a complaint to PALS I’ve been put under a new consultant who I am seeing on the 9^th May. In the last 12 months I have had nothing but trouble with my pouch, whatever I eat causes me to spend most of my time on the toilet and I am getting between 2 to 5 hours sleep a night. Since September 2021 I have had an MRI scan, CT scan, CT PET scan at the Christie and a pouchogram. It’s been discovered that I have a stricture as well as desmoid disease. At the start of February, I was asked if I wanted to have a temporary colostomy bag to give me some relief which I have agreed to. I am hoping I will get a date when I see my consultant next week. I was told on the 1^st March it would be in 4 weeks or so but that was with the 3^rd consultant. Has anyone else had constant toilet issues due to a J Pouch?

Thanks