Permanent stoma

Hi if you put your questions on the iliostomy,colostomy and stoma support group,I think you will get loads of answers.

Also if you click on peoples user names you can read their bios.

All the best

Kath

Thank you Kath, I’ll try that x

https://community.macmillan.org.uk/cancer_experiences/ileostomy-and-colostomy-discussions-forum

Hi 

Just want to say hi and add in the link to the stoma group .

So sorry to hear you are struggling with the thought of surgery . It’s totally understandable. Kareno62 might be able to share the surgical side . There are others here with a permanent stoma and I am sure they will be along soon . 
You have done so well so far and we are here to support you through this part too .

Court 

• Thank you x

Hi New

Welcome to our group. I found so much support and advice after I had my operation and had to manage my stoma. Although mine was a different operation I had a LAR if you click on names you can read their bios. I may be reversed but that’s still out for the jury to decide
So I am now six months on and typing this from a Villa in Spain. I’m eating with my family in restaurants sitting in the sun and enjoying life again. The cancers in the bin and my Stoma named Whoopi is my life saver and my stoma is actually easier than having that pressure and stress when the tumour was growing. 
Join the stoma support group and just write your concerns and you will get so much support. 
I didn’t have chemo and I had an Ileostomy. 
I went away eight weeks after my surgery it was only a stop over and not far but it was the beginning I have lots more planned. 
I hope this reassures you and gives you a boost. 
Get that cancer out with whatever you’re given then you can just do whatever you like doing. A stoma doesn’t stop you from Swimming or wearing whatever you want. 
People don’t know about mine I only share if I want 

Hi  and welcome to the board. There’s lots of information and experience on here so please feel free to ask anything you like. It sounds like you’re having an APR which is a little different to what I had but you might like to have a look at this previous post?

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/bowel-colon-rectum-cancer-forum/231181/aper-surgery-questions?pifragment-13906=1#pifragment-13906=1

My friend had this op 5 years ago, recovered well and life carries on as normal with her stoma - she works full time, goes on cruises, wears what she’s always worn and goes out for meals and drinks. It may be a tough few weeks recovery but focus on taking things slowly and we’ll be happy to help and support you through this

Take care

Karen x

Thank you x

Hi.dont know what sort of stoma you will have.I have a permanent iliostomy.It really is no bother and nothing to worry about 

I wear the same clothes and eat almost the same diet as before(actually for me a better diet as previously  I had UC)as artsie says it doesnt stop you doing anything and no one even needs to know you have one if you dont wish to tell them.

All the best

Kath

Thanks x

Hi New

I have a permanent colostomy and a urostomy (I had a different cancer)and you do soon get used to managing a stoma. Lots of useful tips and advice relating to stomas in the stoma group for which Court has provided a link in her post. 

Sarah xx