Stage 4 Bowel Cancer, now spread to lungs and liver

My thoughts are with you and your husband. Please try and take one day at a time as im trying to do. Does he receive care from anyone else? I have many regrets about symptoms. You may want to look at my last post.

Hi, we had a nurse turn up out of blue about a month ago and was told they would sort out 'end of life kit' we started really thinking the worst. I ended up picking it up from pharmacy. Not pleasant at all. Another nurse turned up end of last week to take blood pressure and go over the same questions, but that's it. Think its coz he's still relatively mobile just. (To the toilet and back to bed where he is comfiest). Thank you it definitely is one day at a time. 

Hi Barbel and I’m sorry to hear that your husband is struggling - it sounds like he’s scared and in pain and maybe not appreciating that you’re trying to help and support him? I’m glad you’ve reached out to us on here as it’s important that you take care of yourself too. We’re always happy to listen and there’s also a carers page that you might like to post on too?

https://community.macmillan.org.uk/cancer_experiences/carers-only-forum

Please think about ringing the nurses on here too - they’re here for everyone affected by cancer not just the patients. The number is 08088080000

Take care

Karen x

Welcome Barbel. So sorry to hear about your husband . It is good he tolerated the first round of chemo . So many meds going into him it’s totally understandable it can affect his temperament! 
However it gives some encouragement that they are giving him treatment .

Hopefully the treatment will have some benefit either with stability or reducing his symptoms.

We are most definitely here for you . My own mum would not have been able to have that chat with the nurse so well done for getting through that !

Thinking of you both ,

Court 

It feels.surreal sometimes. Ghastly disease. 

Hi Barbel, I know how your husband feels because I have bowel cancer metastasis to lung. My bowel cancer is non operable and I need to have a stoma bag to help to ease bowel obstruction. The cancer cell on my left lung lining makes me pain and I am constantly on morphine. I know I should not use morphine too much but got no choice. U can ask the GP to give u some alternative pain relief. My Gap prescribed me another type but it’s too strong and cause me unconscious because I am too thin now. I am waiting for the Immunotherapy. Wish your husband can be better. It’s hard. 

Thank you everyone. It's so shit for everyone. He is having a good day today up and about, shame about the past 3 days.. Our youngest daughter saw him yesterday for the first time in a couple of weeks and was shocked. She said mum he is just skin and bone. Yes unfortunately this has happened very quickly. 

I wish he could have had immunotherapy,  unfortunately the hospital(not Harlow) lost his blood. 

Quick question though....does chemotherapy get stronger on each round?  As finding this one different. 

It can accumulate Barbel  so you may notice it does impact them a bit more with each round . Although the second was always the worst for my mum and the 3 rd and 4 th slightly easier so it can be individual.

Is he managing to keep his fluids up ? We found small sips of water was easier than trying to take a whole glass at once !

Your daughter must have had quite a fright !

Hope he is ok !

Once the first few days of steroids stopped my mum dipped a bit then would surface again .

Take care ,

Court 

Thank you Court. That all makes sense. Yes he is managing with water thank god. I've bought so many straws (environmentaly friendly) which have helped. X

Good on you ! I am trying on the environment friendly front too ! 
Court