New to the forum. Rectal cancer treatment started.

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Retired 62 year old in Edinburgh.
Did a routine bowel screen test just after New Year this year. Flagged up blood in the stool so colonoscopy arranged 28 Jan.
Bit gutted to find a tumour in my rectum. CT and MRI scans showed localised and no spread to lymph system.
I was aware of a slight issue with "wet farts" while peeing. As a result found myself sitting down to pee to avoid fart leakage. Otherwise no symptoms.
Met oncologist who proposed chemoradiation for 5 weeks to reduce tumour prior to surgery.
I was summoned to have a covid jag 17th March so that was good.
A planning scan was done early March and treatment started 29th March.
Appointment time is late morning so not rushing about to get over to the Edinburgh Cancer Centre on time.
Combination of daily radiotherapy with 1650mg capicetabine tablets twice a day.
I was anticipating nausea due to the tablets but all has been good so far.
No significant side effects so far.

  • Hi 

    Long may that continue . Also welcome to the forum . Although not in Edinburgh my mum had a liver resection over in Edinburgh and I was very impressed with the team there , but I can understand you wanting to miss the worst of the traffic. Especially as we will hopefully be returning to some more normal activities in the near future . 

    Others will pop on and share their experiences with chemo radiation as that’s a part my mum did not require . But I just wanted to welcome you and hope you feel free to join in the chat .

    Great news there is no spread !

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Hello papajoe, two years ago about now I was starting the same chemo radiotherapy as you for five weeks. I didn't get much by the way of side effects, occasional looser movements but they gave me loperamide to control it. I expect they will wait for a few weeks after this inititial treatment has finished before going any further as the radiotherapy continues to work for a while after te last dose.  Mine reduced the tumour considerably it was so well trageted, the surgeon even had second thoughts about operating.

    I went on to have the operation, a lower anterior resection with a temporary ileostomy followed up by some insurance chemo. The stoma had now been reversed and a recent set of tests have given me the all clear.

    It's good to know yours hasn't spread. No doubt as you go on you will have  a few ups and downs but the system does work! I wish you all best for a successful outcome.   Cheers, John

  • Former Member
    Former Member

    Hi, 

    Like yourself i have been diagnosed with rectal cancer, started just the same, though i thought piles were the issue for a while.

    I can relate to the sitting down to pee  and the " wet farts",  that is a real issue and inconvenience. I have been unable to work because of that, hard as i am never off work for anything.

    I am close to starting chemotherapy, i was to have my rectal cancer removed by surgery    but a scan found a small tumour in my liver, so there plan is to hit both at the same time with the chemo, as dealing with one allows the other to develop, which i guess make sense.

    I wish you all the best with your fight back.

  • Thanks Court,

    Definitely have strong confidence in the team in Edinburgh.

    Nearly done with the radiation. Wont know what to do with my mornings in a couple of weeks.

    Phil

  • Thanks Grampsie.

    Hope the chemo works for you. I think our chances of coming through treatment with a good outcome is pretty good.

    Take care

    Phil

  • Thanks crankshaft.

    Good to know your treatment has had a good outcome.

    Nearly done now. Only problem is a burnt bum but creams are helping with that.

    Started treatment with a back pain (pulled muscle) and taking cocodamol which might be counteracting the diarrhoea.

    Hope you have made a full recovery.

    Phil

  • Hi Phil, Good to hear you are getting through it ok, I was lucky enough not to get the burnt bits though the radiotherapy did fur up the water works. I can relate to your question of what will you do with your mornings. I commuted to Guys in London for five weeks, five days a week and it was almost like having a job again! Seemed odd when it stopped.

    I hope all goes well for the rest of the treatment.

    Cheers, John