Husband newly diagnosed

FormerMember
FormerMember
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Hi there, my husband has been through the wars over the last 5 years with having bladder removed and then last year his kidney. We have just had the diagnosis that he has now terminal cancer and he is going to try chemo to let him extend his life. I am obviously very upset and I don't want to lose him but that is just being selfish. I was wondering if anyone had any advice to help him and me cope with this news.

  • Hi 

    Welcome to the forum but very sad to read your post . I think we all association with wanting to keep a loved one in our lives . I think that’s actually lovely he means so much to you but like you want the best for him and to be free from pain . It’s a difficult balance for sure .

    If you click on my user name you can read my mum’s story . It’s difficult to know on a forum just how extensive someone’s cancer is but there is a group of bowel cancer patients who actually respond quite well to treatment and extend their lives but years . So it’s certainly not without hope and it really does depend how he responds. 
    Concentrating on his well being is a great place to start but also on your own . It’s a time of considerable pressure for you too and it’s important to find some coping mechanisms to help you endure this . So I am really glad you reached out to us and hope we can support you too .

    It is a bit like preparing for the worst and hoping for the best . For us it was important to focus on living within each day in both very small and bigger ways . That gave us a bit of grounding to get our strength up . My sister was of the firm opinion it was not over until the dr said there was no more chemo options . Till then we would live each day as it came . I held onto that as bowel cancer had quite a few chemo options . We treated it like a chronic condition and planned for events within weekly slots .

    Only our approach and not for everyone I totally understand. But initially I felt I was grieving whilst she was still alive and it was such a conflicting emotion.  But with time we got stronger and more able to process some of it . You will see from my bio my mum responded and I then had to learn to stop grieving at that point . It was very complex at times. 

    Anyway please feel free to ask any questions. We might not always get the right answers but we are trying .

    Take special care ,

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    Thank you for your kind words. We are just waiting for him to have his second covid jab and then they can get him admitted. I think that because it is so new that getting your head around it is quite difficult and not always looking like a puffer fish all the time.