Hello.. my mum.was diagnosed with rectal cancer apx 24 months ago. She has had a stoma bag fitted for just over a year now. This last few months i have been shocked by how poorly she looks .I feel like she has been abandoned by her Dr's ( it took 22 weeks to receive telephone scan results from last july ) she is due another scan tomorrow and I just know its going to be bad .. the july scan showed lung tumours had developed . She hasn't had chemo since June 20. My Dad is pretty poorly with COPD and i feel like screaming most days . This stupid virus has robbed her of chances to get out while she is physically able to. How do you just keep upbeat and carry on? Im definitely a more practical person ( putting hand rails up .. decorating etc) than nurse material but i don't have any siblings so its all on me and that terrifies me . Mum.is very reluctant to get help from anyone else and wont call for support from anywhere or use any of the information she has been given..Im sure she is scared and in part burying her head in the sand .Sorry for the long post but i am absolutely dreading what comes next .
Hi
I am really sorry to hear about your mum. I can’t quite get my head around her scans . That is about the longest delay I think I have heard . I take it she finds it hard to chase them up ?
Lung mets can be really odd . My own mum’s took two years to grow from 2 mm to 8 mm approximately . However if you also see a change in her physical appearance that is not being investigated or supported that is a concern . To be honest my own mum gave me quite a fright today . She suddenly looked really frail and I totally agree striking the balance with covid is so , so hard . I feel the isolation is now becoming a real issue . Although I totally understand the need .
Are you able to email her team and raise your concern ? Our helpline staff 0808 808 0000 would be happy to chat any aspect through with you .
You are also welcome to chat things through at any time here . I take on board your point about all support coming through you even although your uncomfortable with aspect . I do too but my sister is a nurse and able to cover that aspect whilst I have often found myself taking refuge in the hallway ! Strangely enough I have been able to assist neighbours with personal care but not so much my own family ! But that’s just life . Whilst your mum likes to have no external input and your able to accommodate that just now it’s not always possible to cover all tasks and many families have to face that . I previously was an occupational therapist so it comes up a lot . What I would say when that time comes a shift has normally occurred and the previous barriers reduce . What I would maybe do in the background is get information on where to access support from . Whilst I hope the scan brings your mum better news than anticipated it gave me peace of mind to know where to go to for help.
Well done on the grab rail installation. I am working on that myself ! But meeting resistance!
Anyway a rather long reply !!
Thinking of you and take care ,
Court
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