Toxic Neuropathy

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Hello. My husband is in cycle 2 of chemo for colon rectal cancer stage 3. Drugs include Oxaliplatin drip every 3 weeks and Capecitabine tablets for two weeks.

My question is about the Toxic Naturopathy which lasted for 3 days on the 1st cycle but seems much more intense this cycle so will probably last longer.

Does anyone have any hints or tips for making things easier for him? I've put old socks on door handles and keep windows closed because of draughts and a blanket close at hand so he can stay warm. 've also bought him some gloves so he can get things from the fridge, still use his phone and work on his laptop. Our toilet always has a cold seat....even in the height of summer. Just looking foany tips or tricks you might have implemented please

Wyrdseed 1 month ago

Looks like my phone threw in some smiley faces lol

Kareno62 1 month ago

Hi Wyrdseed Yes unfortunately the neuropathy can increase but you sound to be managing a lot of the main triggers. I found a heat pad to help on the first couple of days as my arm felt like it had been thrashed with stinging nettles.
I’ve attached a link to a top tips post that we did a while ago which may help and also a more recent post which a lot of members have contributed to

CHEMO TOP TIPS UPDATED

CAPOX JOURNEY

Take care

Karen x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

Wyrdseed 1 month ago in reply to Kareno62

That's awesome Karen. I'll take a look and thank you x

Anbou 1 month ago in reply to Wyrdseed

Hi Wyrdseed, Your husband seems to be having the chemotherapy treatment I had, namely Capox (I had 6 treatments) with oxaliplatin every 3 weeks through a canula put in in the elbow area each time. This worked well for me but keeping the arm as still as possible and watching that the oxaliplatin drip is steady. The temporary neuropathy-like stinging pain usually ebbs away after 2-3 days. It should get a little easier with warmer weather. However, it is important to note that if a PERSISTENT cold painful/tingling sensation starts in the feet/lower leg and possibly some slight persistent tingling/numbness in the fingers, do mention to the medical staff and the support staff as it may indicate the need to reduce dosages and/or the number of treatment. In my case, after several years post treatment, I live with a sort of peripheral neuropathy with painful/stinging/numb cold feet/lower leg 24/7 as well as some numbemess and stinging in the fingers. I have DPP deficiency which may have contributed to this permanent neuropathy. I am otherwise quite fit (82), walk for miles, and have a good appetite (very mixed diet and most important to chew well and not eat too fast after bowel cancer surgery, chemo etc). Rest and a good lie down with loose warm socks helps body and soul ! All the best. Anbou.

Wyrdseed 1 month ago in reply to Anbou

So glad you're through it Anbou and thank you for your advice and supportive words. Luckily he has a port fitted which has made the treatments much easier so no needles in veins. Again, thank your reply