Thining hair

Sorry, I'm new to all this. I was trying to ask about hair thining.

I've had 2 rounds of FOLFOX and my hair has started to thin out. Does anyone know how long it goes on for?

Hi Den64 , 

I can’t answer the hair thinning as I was on capeticine (I lost hair all the way through but it only thinned, it didn’t disappear).

I had an op first then on my first chemo appointment I sat in the cancer centre looking around thinking ‘how sad all those people have cancer’…. It was only when given the chemo drug that it struck home and I cried for two hours.  

it’s very normal…. It’s your own experience. Do and say what feels right for you.  

wishing you all the best with your treatment. 

cerysm 

I was on capecitabine, all through my treatment my hair tinned and bears didn't grow.  But now 3 weeks later the beards are growing gradually,  even though my hair is still tinned. 

Cerysm

Thank you for your lovely message. It all feels unreal. I know what needs to be done,but it's like I'm on auto pilot. 

YIDAA Thank-you for your reply. Good news about your beard.

Hi Den64,

Don’t apologise you’re not whittering on. It’s a very surreal feeling and even now nearly 4.5 years from diagnoses , that period sometimes feels like a bad dream. I went through a long period on autopilot.

I had FOLFOX in 2021 after LAR surgery. I was prescribed 6 rounds but only managed 5 due to complications.

My hair thinned a lot at the top and across the front, a bit like and upside down ‘T’ shape (I'm female & I’ve always had very fine hair anyway and not a huge amount) so I felt it was quite noticeable, however it didn’t disappear. I actually got a wig which made me feel less self conscious.

After treatment I cut my hair very short & I think it was about 3-4 months before I could really notice it was growing back. It grew back curly but the curls didn’t last long.

At the time I told my myself it showed the chemo was getting around my body and doing it’s job.

Wishing you all the best and please let us know how you get on.

Net77

Net77 thank you for your reply. 

Hi Den64 ,please feel free to express yourself in any way that comes to you , you are never going to be seen as " wittering on"  a cancer diagnosis is a bomb dropped on us and it shakes our whole world. 

I had a LAR in Dec 24,mop up chemo by Capox from Feb till May and my hair kind of stopped growing ,really - didn't lose any,  but I have naturally thick, wavy hair . Now, 3 months after chemo my hair seems as it was before cancer.

You keep smiling if you can - you can get through this and you are not alone

Hiya, I’m on cycle 10 of FOLFOX.  I was lucky I started with very long fine but thick hair.  I lost a quite a bit the first two or three cycles but then it eased off.  I would say I’ve lost about half but I’ve had a lot of cycles.  I’ve cut it a bit shorter and it passes as normal ish.

I’ll be interested to see if and how it grows back and if I’ll need to go short to incorporate new growth. I loved my long hair, it was my USP and I miss it a lot.  

I thought washing would make it worse so originally left it over a week between washes but now I’ve found washing actually helps so I don’t let it get greasy now. Don’t brush and make sure you comb gently. 

Good luck and I hope the fall out stops soon.  
Lee x

Thank you for your support Nevermind.