Hello everyone,
I am new here. I turned 40 this year and so far my forties have been pretty terrible! I was wondering if anyone has experienced or is experiencing anything similar to me. Here’s my journey so far.
A positive FIT test of 13 following a flare up of haemorrhoids in February of this year. Upon inspection an “angry bleeding lesion” that was found.
Next a colonoscopy took place but nothing could be removed due to it being an ‘adenomatous carpet lesion’ so I was referred to a consultant to discuss TAMIS surgery. At this point I was looked at and told again that it looked benign.
TAMIS was performed on the 12th May and the lesion was found to be larger than expected and tricky to remove as it was rooted quite deeply but they explained that they did manage to remove it all from the muscle wall.
Test results came back on the 6th June as there being cancer cells present and the histology report says that is “early”. I was completely floored by the findings as I had been told all along that it looked benign.
I was wondering if anyone has had experience of having a tumour removed first before cancerous cells were found and what happened afterwards? In an ideal world the cancer would be gone with the tumour but since finding out I am having all sorts of horrible thoughts of it being all over my body. I am awaiting the date of a CT scan and my MRI is happening in a couple of weeks.
Thank you in advance x
The waiting is terrible. It is natural to be very anxious right now.
In general, colon cancer is usually very slow growing. It sounds like there were some cancer cells in an otherwise benign tumor. Thank goodness they got the tumor out already!
The doctors will evaluate your results and scans for any signs of spread. You might be looking at some mop-up chemo. You might be told wait and see.
Good doctors will get all the information together, pathology results and scan results, before making a recommendation.
While you wait for scans, your job is to try to stay calm. Stay off Dr Google and take care of yourself. (Not that easy, I know!)
Hello Susan,
Thank you so much for your advice. It really is a horrible period of waiting and It’s hard not to think the absolute worst. I went to the doctors because my heart felt like it was pounding in my chest since finding out and that was something else that was worrying me.
Yes I am so relived that the tumour was removed first. It feels like the first big hurdle is out of the way at least.
Tbank you again, it’s good to discuss with people who have experienced similar things x
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