Why am I seeing this.

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I was told after my ct scan that they saw nodules on my breasts but not to worry and I’d be referred to the breast clinic but I’ve seen this in my nhs app.  I’ve not even seen the breast clinic.  Why am I on a surgery list?  What’s the chance of having colon cancer and breast cancer?  

  • I honestly don't know but maybe they want to remove the nodules to be safe?

    I wouldn't worry since they told you it was nothing to worry about. 

  • You are probably right.  I’ve decided that to see a specialist they have got me into the system.  I was supposed to go for a mammogram 2 years ago but I missed it because my dad died.  Every time I’ve spoken to a nurse or doctor I’ve asked how I get back into the system because the Jarvis people wouldn’t let me rebook without a reference number.  I was just told I’d get picked up on the next round of invitations.  That was over 2 years ago.  My surgeon just said he’d get me back into the system.  In my head it’s definitely not cancer because they didn’t say it could be.  I’ve got the appointment on 30th.  It upset me today because after my surgery I still feel positive and I’m doing so well.  I’ve been reading everyone’s posts and I know how lucky I am.  So that brought me back to earth with a thump.  

  •   what a horrible thing to happen, particularly when you have been through so much! I am a bit behind you in terms of getting a plan, etc, only had the blow from the colonoscopy a week ago, but I do have issues with the NHS app, so much so I deleted it! My FIT result was mega high and just landed there for me to see, so I can't take any more surprises! I am sure this is just you getting back into the system, not flagged as urgent or anything. Hope you continue to recover well xx

  • I did see your post about deleting the app.  I really did consider it today too.  I guess I really don’t have anything to worry about for now so I’m finding things.  Ive worked out I’m definitely a head in the sand person   If I can’t sort it myself I become less bossy and I follow instructions and just go with it.   

    The week before my op I went to see my GP about the breast referral and she said it’s both so she felt it’s probably just how I am.   The MDT haven’t said the c word about it so I parked it   I got the appointment which would have been two days after my surgery so I had to move the appointment.   

    for you I hope you get some answers soon.  I’m hoping you get your plan sorted.  I’m in awe of every receptionist nurse doctor and cleaner that I’ve met   They make me feel safe and take so much pride in looking after us at our most vulnerable.   Xxx

  •    thanks x it's so good to read how you are doing post op and the positives within this bloody nightmare! I am terrified of meeting consultant, struggle to see beyond worse case stuff even though I know we shouldn't, but need a plan. Finding this unbearable.  I almost reinstalled app to see if CEA results there but then thought if they are really high, what am I going to do with that information aside from spiral? Take care of yourself xxx

  • Hi  

    My mum had this ! I think once a cancer diagnosis is given you get the gold standard of investigations thereafter . Everything the scans threw up resulted in a different specialist and had to be ruled out rather than ruled in . But despite the anxiety it generates , clinically it was a good thing .

    She too saw a Breast surgeon but that was just the banner it fell under . My mum had cystic breasts from in her forties and as soon as I turned 45 they popped up too. Sometimes they fill up a bit . I have had a few drained but again I see a breast surgeon but never had surgery . They can track them back to my first mammogram at 45 . It is helpful going forward as they are now a baseline for future mammograms . Apparently it is quite common in perimenopause and having gone through the menopause it’s reduced . 
    But they still show on a mammogram.

    However one of mums was still there in her late 60 s so off she went for more investigations. 
    She was also shocked to discover she had an aneurism in her kidney ! Others who don’t scan just don’t know what’s going on !!!

    Hopefully all will be well . The surgeon felt pretty sure right away what was of concern and what was not .

    take care. 

    Court 

    Helpline Number 0808 808 0000

  • Hi  

    I was redirected to a different colorectal consultant this year and on the nhs app it showed "general surgery".

    I suspect consultants and registrars are from various surgical streams. It does not mean your being lined up for surgery, just awaiting a consultant to review your case.

    It also mentions 6wks wait so, at this stage, they don't have you on a 2WW cancer pathway either.

  • I think that, as one of my colleagues put it, 'once they get your hooks into you they don't let go easily' ! 

    I had a few things show up on my initial CT scan for bowel cancer (a thickened uterus and a couple of spots on my lungs) which my colorectal consultant said they would follow up in due course. So a couple of months after the bowel surgery I was referred by him over to the gynae department at the same hospital, and also given an appointment for a further CT scan on my lungs. 

    Unfortunately the gynae investigations (ultrasound and then hysteroscopy with biopsies ) have now come back to show endometrial cancer, so I'm awaiting further surgery, this time for a hysterectomy. 

    It's a blow, but I'm relieved that these things have been detected now before I've been showing any symptoms or feeling ill, so I'm just hoping that like the bowel cancer it's the case of getting through an operation and thenbeing able to draw a line under it - fingers crossed. 

  • I suspect you are right and to be honest I am grateful that they are following it up.  It hit me a bit yesterday because I kind of felt that I’ve been through enough but I know it’s all for my good so I’ll stop stressing and just do as I’m told and be thankful xxx

  • Yes not 2ww.   I was so proud of myself getting through the bowel surgery just to see I’m having another.  It was a bit much to take in.   I just remind myself what the surgeon said about not to worry.   They have been spot on this far.   Xxx