My Dad 66yr old with bowel cancer stage 4 with liver mets

Thanks for the tips on "Hydromol Emolient (also comes in a tube for applying directly to spots) and a brilliant cream for his hands called Flotil...

Meantime my Micropore tape experiments for finger splits are making good progress.

I'll try anything once!

Patrick

HI GUY,S,

                     JACQUI HELLO AGAIN, sounds like alex and myself are in the same race, i finish the first lot of treatment tomoz then blood tests on fri and mon morning start all over again. i can honestly say it has been the worst time of my 60 yrs on this earth in fact after the first week i actually stopped taking the capecitabine , reluctantly starting again after one day on the good advice from my daughter, but believe me had it been left to me the towel would have been on the canvas.i did not think the side effects of this awful drug were so harsh, having suffered most of the ones talked about on here, I intend talking to my onc on mon before resuming any more treatment,

               Not wanting to be a defeatest i am not sure at this stage if its what i really want, sat at home for two weeks feeling so ill is not my idea of quality. i am sure i will be slaughtered for these comments but thats how i feel right now.                   hope all my friends are doing o.k. love to all.  IAN XX

Hi all,  Jash great to hear that Alex is doin so well.  Ian can completely sympathise with the treatment side effects.  My Dad has had a really rough time on Folfiri - in and out of hospital, with infections and various things.  We are getting a scan on Fri so we are hoping to find some good news that this has all been worth it!?  Dad had very few side effects on the capectabine and tolerated it very well, but it stopped working unfortunately.  Yes certainly a lot to way up.  Have you had a scan recently?  We are very scared about what the scan may say, but in the meantime without treatment Dad is doing very well.  But of course we want to continue treatment, just need the reassurance of the scan to say whether the treatment has been working, and then I guess we can way up the side effects.  Best of luck all, and to Magda and Gregory tomorrow XOX        

Hi all

I am in the hospice now and Gregory is sleeping. We will see the oncologist tomorrow but Gregory has been sicking and had a bad pain since Friday. We were offered to come for couple days to try to manage Gregory's pain, nausea and vomiting. I know unofficially that there is a plan for further treatment, probably chemo for Gregory. But if he stays in the same bad condition he will not be able to start this treatment. I am so worried that this treatment may help but he may not be able to even start it. But I hope that next couple days will be better for him and he will start eating again and gain more strentgh...

Love to all

Magda

Hi Magda,

I am so sorry to hear that Gregory is now in a hospice. I do hope that his pains are managed properly and that you will have time to talk about all the things you need to discuss. Life is always precarious but it does seem so hard when cancer strikes and does not respond to treatment.

My heartfelt thoughts are with you both at what is a hard time. I do hope you will have the strength to talk all you can together.

Patrick

Magda,

I'm so  sorry about Gregory my love.  I hope he becomes well enough to have chemo, but,  whatever happens I hope  the hospice can make him comfortable and pain free.  Will be thinking of you both.

All my love

Ann xx

Hi Magda - I am so sorry to hear that Gregory is still unwell.  Great that you are getting the added support of the hospice care.  I know you are Polish, do you have any family support there?  My love and well wishes go to you and Gregory, and I will be thinking of you today when you have your oncologist appointment.  Let's hope that the hospice can help with the pain, and getting him strong again for more treatment.   XXX -Jules   

Hi Ann

Hope you CT results are what you want to hear, as we all say, its the waiting and the unknown thats dreadful.

 Im due to see Onc this thursday before treatment, after last time the nurses said I must see her first! Cant say I blame them. Fingers and toes are really quite numb now, bbut I still want to press ahead with the treatment, even if I get to no 11 and then they decide to just give me the Capectiban on its own for no 12. Phsychologically I will be happier. Just have to wait and see....

Let you know what happens

Good luck to all of you, unlucky enough to be on here...

Sue x

Hi Magda

Just want to let youm know my thoughts and hopes are with you.

Sue x

Thank you everybody for support... You are all great... Gregory's younger brother stays with us at this moment. His mum will come in about 2 weeks. My brother visited us a month ago. Unfortunate my father is an alcoholic concentrated on himself and he does not care about anybody else apart from himself... My mum died 20 years ago when I was 11, Gregory's father too. But we have great friends in UK. Two of them are visiting Gregory every day and they help when I am at work. Gregory will completely depressed without them. They are like a gift for us...

 I am staying overnight with Gregory in hospice. He has very nice single room and I was given a small bed to sleep on it. People are really nice here. I was told that they will do everything to help Gregory to control symptoms and get strength to be able to start further treatment. I do not know what Doctor will offer tomorrow. But I am trying to rebuild my hope because I cannot exist without it. He is calmer at this moment without that horrible pain, nausea and voimoting... I am going to pray even stronger that before...

Take care ... and I wish all of you success with that horrible illness...

Magda