Hello everyone, I really feel quite embarrassed about posting this message because I can see what others are going through at the moment and I worry that my problem might seem trivial. Apologies if it does but I just can't stop worrying and I just feel like I'm living in fear all the time. I had a surveillance scan in early December (diagnosed with stage 2 BC February 2021, two lymph nodes affected) Results have shown, in the MDTs words "a tiny nodule on my peritoneum, that may very well be reactive in nature and docs not overly concerned" They want to scan again in 3 months. My CEA levels taken weeks before the scan were normal. Apparently the nodule is too small to take a biopsy at the minute but I just want it gone. I'm scared stiff and keep imagining this thing growing and that it's going to be left until it turns nasty and spreads and then it's too late and I've had it. Trying to get on with life but the worry is weighing me down.
Hi,
I’m new(ish) on this journey so possibly not the best to advise but I like to think that now they know you have cancer, where it is, how bad it is etc that they will catch anything before it gets ‘bad’.
i find out today after the MDT meeting if I need surgery or chemo first on my BC. I’ve also been told that I have some ‘spots’ on my lungs but they will just keep an eye on those. I’m now scared I have lung cancer, will it turn to lung cancer but I’m hoping that now they know they are there, even a rescan in 3 months is ok.
I do have a lung condition and the spots could just be that. It’s a horrible journey. The worry is always there as I’m finding out. For the first time in my life, I am having to ask others for help and I don’t like it.
fingers crossed all is ok for you
I feel for you Josianna I am sure half the population must be walking around with these lumps and bumps inside but we have the luxury of not knowing ……yet !
Its so hard on people who have had cancer as as every tiny aspect of them is put under the magnifying glass and although clinically that’s a good thing as they whip any potential problems out as they emerge, emotionally it’s really tough .
Remember our helpline staff are there to chat through moments like this .
Half the wee nodules my mum has disappeared.
Holding out it’s just a wee reaction .
Even my mum’s lymph nodes seem to be reactionary involvement.
take care ,
Court
Helpline Number 0808 808 0000
Hi. A lot of forum members summarise their cancer journey in their profiles, you may find some reassurance in reading their journeys. I am also a member of the incurable cancer forum and there are plenty of members there who are still going strong thanks to their care teams. Believe in your care team and try to focus on the knowns rather than the unknowns (easier said than done, I know) but this approach helped me and my BC is rare - being 2 out of every 100, so there’ve been challenges for my care team along the way too.
Hope everything turns out well.
Maninbath
Hi Court, have spoken to the specialist nurse today and she said that it's amazing that the scans can pick up such tiny things, my nodule is only 5mm in size. Keeping everything crossed that is just a reaction or it stays tiny!!
Thanks to all who have responded to my post. Sending best wishes to everyone affected by cancer xxx
Hi Josianna, I’m sorry to hear you are going through this. I had emergency surgery in November for bowel cancer. A week later, I was re-admitted to hospital with a possible blood clot on the lung. Thankfully the shortness of breath turn out to be caused by my anaemia. During CT to look for a blood clot, they found a nodule on my breast, I was devastated and couldn’t help but think the worse. The waiting to be seen in breast clinic was the worst, I had convinced myself it was cancer. I had 2 mammograms and a scan, they have now given me the all clear. I’m dreading my next CT.
I hope you nodule is gone by your next scan, I have everything crossed for you.
Rachael x
Hi, I’ve just read your journey, thank you for sharing on your page. I had my tumour removed in November then received my diagnosis of poorly differentiated signet ring cell adenocarcinoma, I didn’t realise it was so rare until I read your story. My tumour was fully removed and I’m on day 3 of adjuvant chemotherapy.
I’m sorry to hear that your cancer is now incurable but I’m pleased to hear that you have a fantastic team of professionals to look after you.
Rachael x
Hi Rachael, thank you so much for replying to my post, I really appreciate it. It's wonderful to hear that your nodule disappeared, it's such a comfort to hear you say that, for you and me!!! I'm keeping everything crossed that the same happens with mine. I'm so scared, I just don't know how my legs are going to support me on the day of the scan (Feb 4th)
Isn't the fear and worry just terrible! You must have been absolutely terrified when you were waiting to be seen and my heart goes out to you. Talk about a roller coaster of emotions, I don't know how we get through it and keep going. Thank goodness we can support one another because it certainly feels lonely at times when we're consumed with these worries.
I hope you're managing to get through your treatment ok, not too many horrible side effects and that your next scan is all good news.
Thanks again,
Jo x
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