Bowel cancer CARERS, FAMILY & FRIENDS chat

Hi Everyone!

Just on To Wish You All Merry Christmas and Hope you have the best day with your families as possible. Helen like me it will be your first without Kevin as I am without Jay so hope you get through it ok. Feels so surreal the house has been calm on Christmas Eve for a change I'm so used to the bustle of him being in the kitchen all day making sure everything is prepped and ready to be cooked on Christmas Day but there will be a drastic reduction in portions for me and my sister this year. Going to William's in the morning for Christmas `brunch` they are going to see Nicole's dad in the afternoon her mum is in hospital she has a load of issues going on sepsis for one and they have found a lump in her stomach can't say it is the obvious until they do biopsies but Nicole is 99% certain it is. She's also been experiencing bleeding from her catheter Nicole says (similar to what Jay was experiencing) She says she will be in over Christmas anyway and after that for how long they don't know. Her mum hasn't been eating in the last couple of weeks either Nicole said so she said they have had to put her on drips and things to get protiens etc back into her. Just reminds me of this time last year when Jay began to take a downward sprial. Don't think this year is going to leave quietly that's for sure. I wish all the very best. Take Care. 

Vicky xx

Helen hope you they can sort out your blood pressure. It's horrible I've had it in the past but It's managed to stabalise now. As everyone is saying just try and relax- though with all you have going on is better said than done- but try your best. Thinking of you and everyone else. Take Care. 

xx

Morning everyone

Yes Vicky it’s very strange I’m sitting in the quiet on my own having a cup of tea before I wake Paul. No Kevin for 50 years, usually lying in bed just chatting and wondering how grandchildren are up to etc etc. It’s going to be a hard day for us but will have to try to put on a brave face.

Merry Xmas everyone will start blood pressure tests next week although I expect them to be high!!

Helen xx

Be brave both of you. I really feel for you and everyone else.  What a difference a year makes looking back at photos that come up on my phone.  So bloody sad but our big girl pants are on and they would not not want us to be sad. Raise a glass to one and all xx. Look after yourselves please xx

Hi everyone hope you are all ok and made it through Christmas family gone back today. Well it was hard walk as expected but Simon had a turn last night my son found him on landing on floor turning blue gasping for breathe I heard this awful sound ran out found my son in sheer panic luckily Simon managed to cough out wouldn't let us ring 999 said he just swallowed funny no one slept listening to him but he has a scan Tuesday bloods yesterday so just said let's see. I have to just have a moan sorry but they have sat all Christmas while I cooked washed up and looked after them my son's girlfriend just sat for 5 days nice to see them but I am so glad they have gone. Sending hugs to you all xx

Sounds like you have had a bit of a rough week. You would have thought that they could have helped you out and not expect you to do everything g for them.

hope his scan goes ok on Tuesday. I am glad Xmas is over too, took cards down and going to put tree away this week.

Spent  the day in an and e emergency department with Paul but home now. He is now on dialysis with nurses coming in twice a day to drain him and put fluids in. He has no quality of life at the mo and I feel so helpless and sorry for him. I don’t know how much more of this I can take. Haven’t even started doing my blood pressure tests as there’s always something to rush off to Paul’s to do. I don’t seem to have a life of my own. Winge over now a feel better having written all that down!

Take care everyone and hope 2024 is better than this year has been

Helen x

Jkee that is awful I think I would have said something. As if you don’t have enough to worry about. I would be fuming. I do hope Simon is okay as les has to miss this chemo due to his infection. Consultant said chemo may be causing it. I would say take it easy but I know you can’t. I have just taken 600 baubles off and wrapped them separately as les can’t do it. Let us all know how it goes on Tuesday but you may not find out straight away. Sending my love Maggie xx

Oh Helen how much more can you and Jkee take. Try and do your blood pressure as it is important that you do. I am so sad you spent the day in A&E and that Paul has no quality of life at present but as you also know you need to look after yourself. Apart from the nurses is there anyone else who can take the burden off you for a good few hours a day.  I will send you all my love Maggie xx

Thinking of everyone xx

Helen you have no life at moment as a parent no matter how old our children are they are a worry my son who is a diabetic as you broke down and told me he is depressed and not coping he and is lonely as a mum I couldn't help him and with Simon felt this next year is going to be a tough one but each day is the same had pain in my chest and shoulders but now know it is stress your blood pressure needs to be take when you are relaxed so that is not easy for you at the moment think if we all stop and think we would break sending love xx

Seems like we are all struggling 

Helen x