Hi everyone
I'm Steph from the Community team
Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer. The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.
Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis:
Supporting someone with incurable cancer forum
You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?
We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk
Sorry to hear you're all having a difficult time. I haven't been on this forum for a while, I forgot my password and had to reset it! I've been catching up and reading your posts, sounds like you're all going through a difficult time. I can relate. There are some days that are relatively ok but then days that are extremely difficult to get through. Sometimes I feel like I'm in a soap opera with a negative storyline. Jkee, sounds like you had one of those weeks! Wow 9 months waiting list, that's so long. The NHS is great but when it's something they consider less urgent, the waiting list is ridiculous. I hope you're ok.
My dad is relatively stable even tough he's been feeling sick more often. It's been a year since his cancer diagnosis and we were so close to losing him. Around this time last year, my dad was in ICU for a month. It's a blessing he's still here. Got to take one day at a time and hope I can get through it.
Thank you for keeping this thread going. I have no one to talk about these feelings in real life.
Hi fallingleaves88 so nice to hear from you we were in the same place a year ago make you remember those dark days I like you taking one day at a time and just hope we can all gather together for Christmas day because we didn't have Christmas last year. Hope your dad keeps being Strong and enjoy the good days with his family sending hugs to your family xx
Vicky you have had a busy weekend and I am pleased your sister is doing well. We have no signs of the Christmas tree going up. Might just do the pop up ones we have in the loft. He will look really smart after being to the groomers. Yes we plod on. I have not opened the doors today as it is too cold. This year has just gone.
Jkee Les has neuropathy in his hands. He does find it really hard to clasp things. Thinking about getting these gloves that have grips on the ends which keep the cold out as well. I really should get my piles done but not doing it as I have read they can still come back. I just put up with them. When stressed they get bigger for some reason. Blinking awful piles. I would have been scared stiff if a dog came up on his own without its owner. Sad about your friend and auntie that is all you need if I have read it right.
les been in bed most of the day. He had his flu and covid vaccines yesterday but said it was not that, that made him feel weak and tired but did not sleep well at all again last week. As you say Vicky we plod on. Youngest granddaughter is 4 and having her party tomorrow I am going but hope Les is up to it. Wont stay too long as too many young ones will be there
look after yourselves everyone. Big hugs Maggie xx
Well I have just wrote a lot of things and not sure where it has disappeared to. Xx
It sometimes happens when you do a reply while not signed in
Well just wrote again and I am signed in and cannot find my replies. Oh dear.
Freezing outside minus 5 just been to defrost the car as haven’t ventured out in it since Tuesday as we have a very steep icy bank and I haven’t the co fidence now with all the cars parked down o e side of it. So haven’t been able to visit Paul in the hospice but hope my daughter is taking me today. Think I will have a look in the garage for a Xmas tree not that I feel much like Xmas
Vicky pleased your sister is doing well and Maggie you are doing great trying to keep your spirits up with Les.
what a year it’s been surely next year will be a bit better
Hugs to all you ladies
Helen x
Morning Helen hope you get to see Paul today the dog walk today was freezing was nervous from the dog attacking us last week but thought if I don't go out the dog will go crazy sits at door and helps me clear my head around the lake. The weather is hopefully more mild next week. I am not thinking ahead because we are still on the rollercoaster but taking one day at a time and as people tell me Christmas day is just one day and it is for the little ones hugs to your family xx
Afternoon Ladies!
So how has your week been?? Mine been ok bit sluggish again but think it's just the time of year. Finding it hard to get motivated. Anyway the tree or should I say trees are up. I have one at the window and a little one in the corner of the living room and just a few bobs of tinsel around and put the flashing star window decorations are back after a year off last year. Stomach playing up a bit again but just hoping it is something that will pass. Got my first Christmas card from a neighbour the other day who has probably genuinely forgot that Jay has gone and put his name on the card or is just being a t**t because everyone else in the street more or less knows he's gone a few even came to his funeral but not him didn't even send a sympathy card. Upset me a little bit but I'm fine now. This neighbour is a bit of d**k and is the type he thinks he knows everything but knows nothing. We have had ongoing issues with them over the years back from when William was little. Because William is my only one he used to pick on William a lot if anything happened with his kids and they all blamed him even if he wasn't there when the incident happened because William didn't have any brothers or sisters to back him up. Anyway to cut a long story this neighbour years ago had issues with his upstairs neighbour with noise etc and it escalated to the extent that violence was being used against him. He was wanting Jay to sign a petition which he was going round neighbours with to get them put out but for some reason because Jay refused, as a lot of the others did too, he started to get to us through William stopping him coming into his garden to play with his kids but letting other kids in and letting his kids invite friends round to play in their house- bar William. That was 20 odd years ago and to this day, he still doesn't acknowledge me. The kids like William are all grown up and away now one of them is even married but if they see me in the street they say hello and his wife says hello but he just walks right by me or doesn't look the road I'm on. Terrible to bear grudges after all those years.
But anyway, back to here. Maggie I hope Les is doing a bit better this week and JKee hope Simon is too. Helen hope your son Paul is bearing up ok as is you. Take Care Everyone. Onwards we go.
Vicky xx
Hi Vicky lovely to hear from you all been a bit flat here Simon loosing weight and looking weak now but he is determined he will not spoil the children's Christmas and grandchildren this year even if he is only here in body they are all happy with that so even though I watch him daily suffering for his request I will leave doctors and team until after Christmas when all his bloods scans are due so let's hope we get to Christmas.Talking about tummy mine is like a washing machine daily I understand hope you have a little comfort having your family around you as for your neighbour just ignore him we all have one of those love to you xx
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