Bowel cancer CARERS, FAMILY & FRIENDS chat

I have done already thanks. It was as quick as that taxi could get me home until I got inside and just fell apart. My sister is still here but as I think I have spoken of her before she has her own issues going on and empathy and understanding is not high on her agenda. All she could say was she felt sick earlier maybe she had eaten something out of date. I don't have anything out of date so don't know where she got that from. I just don't think she gets that she can be insensitive and not know it. It seems to be just how she is feeling etc and said something like `oh is he feeling bad`? Ffs he's dying how much worse can he get. She's made me some tea so that's about her limit she can make a good cup of tea. Well hopefully tomorrow will be a better day. He did actually say to me `Happy Anniversary` before i left tonight and I said `Love you loads` and he said `Love you millions` so he did remember it was our anniversary in the end though it wasn't in the best of circumstances think those little declarations of love just brought everything to the surface for me. The ironic thing is though that I got a letter in the post today. My NHS bowel screening kit. Really, you couldn't make it up. Had a Diazepam and a cuppa so hopefully that will calm me a little. Take Care All.

xx

Hi Maggie. Not sure Barry would have coped well with chemo but we will never know. He has been a bit stronger today so hoping the terrible weakness he has been feeling has been a blip and maybe we are getting back to how he was a. Opulent of weeks ago. 

sometimes the not knowing what is going on is the hardest part. 

I think maybe a new thread each month might work as long as the old threads are there somewhere should we want to look back for any reason. 

hope today is not too bad. 

take care. Pauline xxx

I understand how you must feel waiting 6 weeks, if something is going on you want to know NOW and see what can be done. This blinking journey is so frustrating sometimes, well most of the time really! 
Barrys bloods came back ok which was not what I wanted as if his iron was low that would account for his weakness, however he is a bit stronger today so happy days. 
how are you going to cope having strangers for dinner. I get in a state when my kids and their families come I have never been a good cook so it is always a panic to me. Good luck, I would willingly look after the puppy if I lived close. 
Take care, Pauline xxx

Hi Vicky. Happy anniversary, I hope the visit to the hospital was a good one today with a little conversation at least. 
You can only take one day at a time, such a difficult time for you. 
Take care, Pauline xxx

Hi Helen, so pleased you are feeling a little better this week, I am sure you will have many ups and downs but enjoy the ups as much as you can. 
Take care, Pauline xxx

Just found my way to this thread also , sorry your day was so sad yesterday on your anniversary patty .

Hope les continues to tolerate the chemotherapy Maggie .

hope everyone has a better day 

Hi Patty 

Just take one day at a time, sit with him, hold his hand and just talk to him.  He may or may not be asleep.  I really feel for you.  Going to the hospital every day not knowing if he asleep or awake. Just spend precious moments with him which he will appreciate and love you more. I don’t have any words of comfort but I will be thinking of you. 

hi Helen.  You are doing marvellous. How was counselling.

went to mother in laws and an infestation of bluebottles it was awful. Just wish Les would put it to auction.  Not touching the back garden but daughter did the front.  Back garden is about one third of an acre and not even a jungle it is horrendous. For some reason he just won’t get rid. Daughter said she is not going again just to do the garden as she has enough to do at home. By the we get there spend a couple of hours come back the day has gone. Moan over.

take care everyone huge hugs Maggie xx

He does okay on it for first 3 days due to the steroids then when stopped on third day he gets extremely tired. How are you doing angie xx

Morning everyone Thursday already having bloods come back ok is good my bloods are abnormal and Simon boarderline so re testing us hope Simon's is ok always something to worry about. Vicky hope your visit goes ok gosh it is sad to read knowing the road ahead with Helen and Vicky. The visitor's came well stranger's 3 cups of tea later and sandwiches they left my god it was hard work Simon sat saying nothing no energy and tired so I was filling in the silent gaps hate that. Puppy fell to sleep next to Simon then woke up with the evil eye so had to let him through to the garden which we had fenced off and he dug massive hole and dug my rose tree up and flowers least the visitor's and Simon were protected got him out the garden with a row of chicken mud all over his paws jumping up all I was saying get down NO lol they left and Simon slept dog slept and I had a another tea but really should have been a brandy didn't eat last night putting house and garden back together but hey ho everyone said they had a lovely time a one off I hope. I HOPE today you all find some peace in your day xx

Morning All!

Got up this morning feeling no better. I just cannot face going to the hospital today but I know it needs to be done No one has phoned otherwise so no news is good/bad news as they say. Just feel like swallowing that pack of Diazepam tablets I have and be done with it but what good will that do me. I can just feel my resilience slip away day by day and I am supposed to be the glue holding everything together.